In Experimental Hand Transplantation, Whose Views About Outcomes Should Matter Most

Consent to any experimental procedure, even when offered as therapeutic, involves extensive discussion between patient-subjects and clinician-researchers. Decision making should be shared with a focus on potential risks and benefits of enrolling in a protocol. Just as patients who underwent nonexperimental interventions might experience regret or reconsider autonomously made choices, patient-subjects who are undergoing or who have undergone experimental therapies should be afforded latitude to reconsider their decisions. Although clinician-researchers tend to be deeply invested in gathering data about patient-subjects' experiences, they are obligated to express respect for patient-subjects' fundamental right to stop being enrolled in research

Alternative medicine · Protocol (science · Psychiatry · Psychological intervention · Regret · Biomedical Ethics and Regulation · Computer Science · Medicine · Organ and Tissue Transplantation Research · Organ Donation and Transplantation · Psychology · Social Psychology · Surgery · Transplantation