Awareness about thalassemia and its management among the caregivers of the thalassemia patients of Punjab and Chandigarh, India
Bibliographic Data
| ID | 15799824 |
|---|---|
| Authors | Rajnish Kumar Singh (0000-0003-2457-3893, Panjab University, corresponding author), Nutan Kumari Jha (Panjab University, corresponding author), Inusha Panigrahi (0000-0001-7375-9892, Post Graduate Institute of Medical Education and Research, corresponding author), Anil Kishore Sinha (Panjab University, corresponding author) |
| Year | 2022 |
| Pages | 258-271 |
| Publication date | 2022-03-29 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Health Sciences (JOURNAL) |
| Journal identifiers | ISSN: 2550-696X • E-ISSN: 2550-6978 |
| Publisher | Universidad Tecnica de Manabi (PUBLISHER • EC) |
| DOI | 10.53730/ijhs.v6ns3.5182 |
| OpenAlex | W4220782704 |
| Language | EN |
| Citations received | 1 |
Background: β-thalassemia is an autosomal recessive condition that causes a reduction in the production of haemoglobin. Despite their short lifespans, thalassemia patients must rely on routine blood transfusions throughout their lives. They suffer from a variety of health issues, the majority of which are caused by iron overload complications. It places a significant financial and psychological strain on both patients and their caregivers, and their perceived knowledge of the disease play a significant role in controlling and enhancing their health-related quality of life. Objective: To determine if caregivers of transfusion-dependent thalassemia patients are aware of thalassemia and how to manage it. Methods: The study examined the caregivers of 105 North Indian thalassemia patients who got blood transfusions on a regular basis in hospitals in Patiala, Punjab, and Chandigarh. With prior informed consent, caregivers were interviewed to evaluate their knowledge of thalassemia and its management with their socio-demographic characteristics. The knowledge of each caregiver was rated using a scoring system and was correlated to the caregiver's SES and education. The data was analysed using the SPSS version 20. Results: The majority of caregivers had sufficient knowledge about thalassemia and their comorbidities, premarital screening, treatment modalities, iron overload, and chelation therapy
Blood transfusion · Disease · Family medicine · Modalities · Quality of life (healthcare · Thalassemia · Treatment modality · Hemoglobinopathies and Related Disorders · Iron Metabolism and Disorders · Medicine · Nursing · Internal Medicine · Pediatrics
| Citations per year | 0.5 |
|---|---|
| Citation span | 2024 - 2024 (1) |
| Highly cited | No |