Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries
A Systematic Review
Bibliographic Data
| ID | 16811055 |
|---|---|
| Authors | Emma Gillette (0000-0003-2719-5138), Winstone Nyandiko (0000-0002-7639-9287), Ashley Chory (0000-0002-3551-5341), MICHAEL SCANLON (0000-0002-0334-5640), Josephine Aluoch (0000-0003-2174-2006), Nandini Choudhury (0000-0003-4127-1176), Daniel Lagat, Celestine Ashimosi (0000-0002-1102-1400), Whitney Biegon, Dennis Munyoro, Janet Lidweye, Jack Nyagaya, Ilene Wilets, Allison DeLong (0000-0001-8660-8073), Rami Kantor (0000-0003-3659-1108), Rachel Vreeman (0000-0001-5460-8204), Violet Naanyu (0000-0003-0182-1719) |
| Year | 2023 |
| Volume | 18 |
| Issue | 5 |
| Pages | 346-362 |
| Publication date | 2023-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Empirical Research on Human Research Ethics (JOURNAL) |
| Journal identifiers | ISSN: 1556-2646 • E-ISSN: 1556-2654 |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1177/15562646231208991 |
| Language | EN |
| References cited | 49 |
Research engaging children and adolescents living with HIV (CALWH) is critical for youth-friendly services and HIV care, and researchers need to ensure that such engagement is ethical. We conducted a systematic review to identify key ethical considerations for the engagement of CALWH in research. The review focused on primary research articles conducted in African countries that examined ethical issues in CALWH engaged in research. Ten studies met the inclusion criteria; the following seven key domains were extracted: 1) justifications for engaging CALWH in research; 2) community involvement; 3) informed consent/assent; 4) caregiver involvement; 5) perceptions of benefits; 6) perception of the risks of involvement; and 7) confidentiality. These domains can inform the ethical engagement of CALWH in research
Scrambling for Africa
Principles of Clinical Ethics and Their Application to Practice
The concept of ‘vulnerability’ in research ethics
Participants' Perceptions of Research Benefits in an African Genetic Epidemiology Study
The Challenges of Research Informed Consent in Socio‐Economically Vulnerable Populations
Stakeholder Perspectives on Ethical Challenges in Hiv Vaccine Trials in South Africa
Navigating ‘ethics in practice’
I think the parent should be there because no one was born alone”
The Significance of Benefit Perceptions for the Ethics of HIV Research Involving Adolescents in Kenya
Community Perspectives on Research Consent Involving Vulnerable Children in Western Kenya
Pediatric Assent for a Study of Antiretroviral Therapy Dosing for Children in Western Kenya
Sexual and Gender Minority Adolescents’ Views On HIV Research Participation and Parental Permission
Adolescent perceptions about participating in HIV-related research studies
HIV and Aids-related stigma and discrimination
Malicious Whites, Greedy Women, and Virtuous Volunteers
| Citation velocity | historical |
|---|---|
| Highly cited | No |