Healthcare for children with congenital Zika syndrome
Analysis of access to social rights
Bibliographic Data
| ID | 16825119 |
|---|---|
| Authors | Fernanda Artimos de Oliveira (0000-0003-0334-5875, Universidade Federal Fluminense), Angela Malaquias da Silva (0000-0002-1809-3300, Centro de Atenção ao Portador de Deficiências, Brasil), Senir Santos Da Hora (0000-0002-0161-3701, UFF, Brazil), Solange Artimos De Oliveira (0000-0002-1862-2348, Universidade Federal Fluminense), Aluisio Gomes Da Silva Junior (0000-0003-2445-3963, UFF, Brazil), Claudete A Araújo Cardoso (0000-0002-7638-6814, UFF, Brazil) |
| Year | 2022 |
| Volume | 27 |
| Issue | 9 |
| Pages | 3679-3688 |
| Publication date | 2022-09-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Ciência & Saúde Coletiva (JOURNAL) |
| Journal identifiers | ISSN: 1413-8123 • E-ISSN: 1678-4561 |
| Publisher | FapUNIFESP (SciELO) (PUBLISHER) |
| DOI | 10.1590/1413-81232022279.02972022 |
| PMID | 36000654 |
| OpenAlex | W4291606316 |
| SciELO | S1413-81232022000903679 |
| Language | EN |
| Citations received | 2 |
| References cited | 7 |
The objective of this study was to describe if the victims of the Zika have access to essential public policies to guarantee social rights. Methods: We used a cross-sectional study of a historical cohort of children with congenital Zika syndrome (CZS) in a reference hospital. CZS diagnosis was based on the Ministry of Health protocol. The variables analyzed were sociodemographic and social rights of children. Results: Of the 161 children seen from April 2016 to July 2018, 42 were diagnosed with CZS. Of these, 37 children participated in the study and 75.7% of them had severe neurological disorders. Anticonvulsants were used by 73% of the children, with 81% paid by families. The families were also responsible for purchasing nutritional formulas and diapers in, respectively, 79% and 100% of cases, and 89% of the children had access to rehabilitation therapy, although 70% of them faced several barriers to do it. Of the 24 working mothers, 83% did not return to the labor market after the birth of their children. Conclusions: The results showed that the families were at an intersection between the integral activity of caring for a child with severe disabilities and inefficient and omissive public authorities, a disincentive and discouraging context that made them give up in seeking their rights
Cohort · Family medicine · Public health · Child Nutrition and Water Access · Genomics and Rare Diseases · Medicine · Mosquito-borne diseases and control · Nursing · Pediatrics
| Citations per year | 2 |
|---|---|
| Citation span | 2025 - 2025 (1) |
| Highly cited | No |