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Understanding Latinas’ Decisions to Participate in a Unique Breast Cancer Clinical Trial

A Qualitative Constructivist Grounded Theory Study

Bibliographic Data

ID17701111
AuthorsKatherine E Ridley‐Merriweather (0000-0002-8556-6382, Indiana University Melvin and Bren Simon Comprehensive Cancer Center, corresponding author), Katherine Vogel (0000-0002-5735-6468, Indiana University School of Medicine), Oseme Precious Okoruwa (0000-0002-0586-6079, Oklahoma University College of Medicine)
Year2026
Pages1-11
Publication date2026-01-05
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueHealth Communication (JOURNAL)
Journal identifiersISSN: 1041-0236 • E-ISSN: 1532-7027
PublisherTaylor & Francis (PUBLISHER • GB)
DOI10.1080/10410236.2025.2609215
PMID41492098
OpenAlexW7118645357
LanguageEN
References cited44

19) who self-identified as Hispanic or Latina and had previously donated healthy breast tissue to a biobank were interviewed regarding their medical research participation decision. The findings center on two primary themes: a) participants demonstrate confidence and self-efficacy in deciding to participate; possible negative feedback from family members was not a part of their decision-making process; and b) the importance of H/L women's awareness of low representation in medical research and the presence and influence of the legacy norm as a decision driver. The implications centered on a) understanding that H/L women have a strong sense of self-efficacy and should be viewed as important family healthcare decision-makers when creating clinical trial recruitment materials and b) a need for researchers to communicate to potentially unaware H/L women that they are being sought out because of their historical underrepresentation in research, and c) targeting constructs of the legacy norm and applying H/L cultural values (such as collectivism) as motivators to participate in medical research when creating recruitment messaging for H/L women

Biobank · Breast cancer · Clinical trial · Constructivist grounded theory · Grounded theory · Patient participation · Qualitative research · BRCA gene mutations in cancer · Ethics in Clinical Research · Race, Genetics, and Society

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Highly citedNo
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