The promises of genomic screening
Building a governance infrastructure. Special issue: genetics and democracy
Bibliographic Data
| ID | 17811516 |
|---|---|
| Authors | Martina C Cornel (0000-0002-5397-5544, Amsterdam Public Health, corresponding author), Carla van El (0000-0003-2201-2320, Amsterdam Public Health), Carla G van El, Wybo Dondorp (0000-0003-4052-7192, Maastricht University), Wybo J Dondorp |
| Year | 2011 |
| Volume | 3 |
| Issue | 2 |
| Pages | 73-77 |
| Publication date | 2011-07-06 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Community Genetics (JOURNAL) |
| Journal identifiers | ISSN: 1868-310X • E-ISSN: 1868-6001 |
| Publisher | Springer Science+Business Media (PUBLISHER • DE) |
| DOI | 10.1007/s12687-011-0056-y |
| PMID | 22109905 |
| PMCID | PMC3312944 |
| OpenAlex | W2009022231 |
| Language | EN |
| Citations received | 1 |
| References cited | 16 |
New screening possibilities become available at a high rate, both useful and unsound possibilities. All screening programmes do harm, and only few have more advantages than disadvantages at reasonable cost. Horizon scanning is needed to identify those few possibilities with more pros than cons. Attunement is needed between actors involved: scientists developing new high-throughput screening techniques and treatment, health care workers, patients and consumers and governmental agencies. The product of a process of attunement may be a quality mark as a norm for professional conduct, rather than legal measures, as the field is moving fast. As actors may have varying perspectives, a governance structure is needed to develop an agenda that is agreed upon by all or most actors involved. A standing committee might oversee the evaluation of benefits and disadvantages in an integrated approach, taking evidence, economics and ethics into account. A proactive role of governmental agencies is needed to facilitate agenda setting and attunement. Policy making has to be transparent and open to stakeholder engagement
Accountability · Attunement · Corporate governance · Democracy · Economic Justice · Economics · Harm · Management · Political science · Public health · Public relations · Stakeholder · Biomedical Ethics and Regulation · Computer Science · Ethics in Clinical Research · Health Systems, Economic Evaluations, Quality of Life · Law · Medicine · Nursing
| Unique citing works | 1 |
|---|---|
| Citations per year | 0,07 |
| Citation span | 2012 - 2012 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |