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Caregiving and Moral Distress for Family Caregivers during Early-Stage Alzheimer’s Disease

Bibliographic Data

ID17814045
AuthorsChris Weigel (corresponding author)
Year2019
Volume12
Issue2
Pages74-91
Publication date2019-08-01
Open AccessNo
TypeARTICLE
VenueInternational Journal of Feminist Approaches to Bioethics (JOURNAL)
Journal identifiersISSN: 1937-4577 • E-ISSN: 1937-4585
PublisherUniversity of Toronto Press Inc. (UTPress) (PUBLISHER)
DOI10.3138/ijfab.12.2.05
OpenAlexW2969532019
LanguageEN
Citations received2
References cited13

As the global prevalence of Alzheimer’s disease increases, the need to understand family caregiving becomes increasingly pressing. I argue that there is an under-recognized form of caregiving for people with early to mid-stage Alzheimer’s disease. This type of caregiving involves, roughly, helping people reason through their values. It arises along with the loss of the capacity for executive functioning. Moreover, it is prone to give rise to moral distress, which is an under-recognized vulnerability in family caregiving. Categories of family caregiving thus need to be expanded, and moral distress needs to be recognized not only in the context of nursing

Developmental psychology · Disease · Distress · Family caregivers · Clinical Psychology · Ethics in medical practice · Medicine · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology · Gerontology

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    Amy Mullin•International Journal of Feminist…•2025

  • Contextuality, Bioethics, and the Nature of Philosophy

    Niina Hämäläinen•International Journal of Feminist…•2021

  • Assessment of behavioral problems in dementia

    Linda Teri, Paula Truax et al.•Psychology and Aging•1992

  • Four Models of the Physician-Patient Relationship

    Ezekiel J Emanuel•JAMA•1992

  • Executive Functions

    Adele Diamond•Annual Review of Psychology•2013

  • Justice Interruptus

    Diemut Bubeck, Society for Women in Philosophy UK•Women’s Philosophy Review•1998

  • Respecting the Margins of Agency

    Open Access•Agnieszka Jaworska•Philosophy & Public Affairs•1999

Citations per year0.4
Citation span2021 - 2025 (5)
Highly citedNo

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