Self-Management Among People Living With Endometriosis

A Qualitative Study

Bibliographic Data

ID18970530
AuthorsRebecca O’hara (0000-0002-7482-1691, The University of Adelaide, corresponding author), Louise Roufeil (Charles Sturt University)
Year2025
Volume35
Issue10-11
Pages1105-1117
Publication date2025-09-01
Open AccessYes
TypeARTICLE
VenueQualitative Health Research (JOURNAL)
Journal identifiersISSN: 1049-7323 • E-ISSN: 1552-7557
PublisherSAGE Publications (PUBLISHER • US)
DOI10.1177/10497323241291787
PMID39540787
OpenAlexW4404376337
LanguageEN
Citations received1
References cited36

Self-management is pivotal for effective chronic disease management. However, this concept remains unexplored among people with endometriosis, who often experience chronic pain and significant impacts on their quality of life. This research explored participants’ experience managing endometriosis and their understanding and integration of self-management into their lives. Inductive reflexive thematic analysis was used to analyze transcripts from 15 semi-structured interviews among people with endometriosis. The themes captured many aspects of self-management and included (1) perceptions of control, (2) engaging in self-management behaviors, (3) active decision-makers versus recipients of care, (4) establishing a patient–provider partnership, and (5) support is vital. The extent to which participants engaged in self-management varied, however, is consistent with self-management literature for other chronic conditions suggesting that there is a role for self-management among people living with endometriosis

Business · Chronic condition · Disease · Endometriosis · General partnership · Gynecology · Perception · Qualitative research · Reflexivity · Self-management · Sociology · Thematic analysis · Education, Leadership, and Health Research · Endometriosis Research and Treatment · Medicine · Nursing · Psychology · Uterine Myomas and Treatments

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