Autonomous Individuals or Self-Determined Communities? The Changing Ethics of Research among Native Americans
Bibliographic Data
| ID | 18977708 |
|---|---|
| Authors | Carolyn Smith-Morris (0000-0002-2202-1588, University of Arizona, corresponding author) |
| Year | 2007 |
| Volume | 66 |
| Issue | 3 |
| Pages | 327-336 |
| Publication date | 2007-09-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Human Organization (JOURNAL) |
| Journal identifiers | ISSN: 0018-7259 • E-ISSN: 1938-3517 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.17730/humo.66.3.qj157567773u2013 |
| OpenAlex | W2111227286 |
| Language | EN |
| Citations received | 7 |
| References cited | 32 |
Ethnographic and biological research among tribal communities demands that a researcher successfully navigate not only the social environment but also the political, legal, and biomedical perspectives that compete in today's ethics battleground. Health researchers are, therefore, increasingly drawn into the complex arenas of tribal identity, self-determination, and governance. This brief discussion reflects upon almost a decade of research among indigenous groups in the American Southwest, spanning some of the region's most hostile and unwelcoming years toward outsiders since the Pueblo Revolt. I focus upon the concept in biomedical ethics of individual autonomy, a powerful but inadequate concept for treatment of tribal decision-making and community self-determination. Incompatible with culture mores of strong family, community, and group decision-making, the principle of autonomy serves as an acculturative agent within medical research and treatment. Alternative approaches to consent, and to ethics more broadly, are called for
Autonomy · Bioethics · Corporate governance · Environmental ethics · Ethnography · Identity (music) · Indigenous · Mores · Political science · Politics · Public relations · Research ethics · Self-determination · Social science · Sociology · Anthropology · Cultural Competency in Health Care · Ecology · Ethics in Clinical Research · Ethics in medical practice · Law · Psychology
Rethinking Research Ethics for Mediated Settings
Leaves imitate trees
Making a Place of Respect
Evaluating Community-Based Participatory Research to Improve Community-Partnered Science and Community Health
Manipulating Cartographies
A scoping review of Indigenous community-based research practices, guidelines, and ethical standards
Decolonizing Care at Diagnosis
Childbirth and Authoritative Knowledge
Tenacious Assumptions in Western Medicine
Authoritative Knowledge and Its Construction
Medicine, Rationality and Experience
Testing Women, Testing the Fetus
Patients and Healers in the Context of Culture
Pathologies of Power
Community Participation in Tribal Diabetes Programs
Doing Bioethics
Ethical Imperialism and Informed Consent
Surrendering to Diabetes
Social Contexts of Health, Illness, and Patient Care
National Bioethics Advisory Commission
Reification and the consciousness of the patient
The Native American Graves Protection and Repatriation Act
The Ethics of Research in American Indian Communities
Free and Informed Consent in Research Involving Native American Communities
Beyond the Rhetoric
Collecting Medical Specimens in South America
Anthropology and Bioethics
Universal Human Rights and the Problem of Unbounded Cultural Meanings
Diagnostic Controversy
Sweet blood and social suffering
A reconsideration of the origins of the type 2 diabetes epidemic among native Americans and the implications for intervention policy
| Unique citing works | 7 |
|---|---|
| Citations per year | 0,41 |
| Citation span | 2009 - 2025 (17) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 7 |