Is community-based research hindered by the institutional review board? A critical case study
Bibliographic Data
| ID | 19225835 |
|---|---|
| Authors | Sarah Toledano (University of Siena, corresponding author), Cynthia Bott (University of Siena) |
| Year | 2026 |
| Pages | 1-8 |
| Publication date | 2026-06-12 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Community Development (JOURNAL) |
| Journal identifiers | ISSN: 1557-5330 • E-ISSN: 1944-7485 |
| Publisher | Routledge (PUBLISHER • GB) |
| DOI | 10.1080/15575330.2026.2687067 |
| OpenAlex | W7164482072 |
| Language | EN |
| References cited | 16 |
The Institutional Review Board (IRB) was created to protect human research subjects. In community-based research, the IRB protections can inhibit centering the voices and experiences of community members themselves. This paper centers on a year-long IRB review for a community-based research project where the authors attempted to center community members’ experiences and use student researchers. Ultimately, the authors decided not to pursue the research through the IRB and become consultants for the nonprofit instead. The authors of this paper adopt a critical lens as they discuss how risk aversion, paternalism, and epistemic injustice work against community-based research and offer potential solutions for IRBs and researchers to use in the future
Academic community · Human research · Injustice · Institutional review board · Research ethics · Ethics in Clinical Research · Feminist Epistemology and Gender Studies · Qualitative Research Methods and Ethics
Power Dynamics in Community-Based Participatory Research
Using participatory action research methods to address epistemic injustice within mental health research and the mental health system
The History and Role of Institutional Review Boards
Protection of Participants in Community-Engaged Research by Institutional Review Boards
Process, Power, and Impact of the Institutional Review Board in Criminology and Criminal Justice Research
I” Does Not Mean Infallible
Participatory Research Approaches with Youth
Ethical Imperialism
Power, Ethics, and the IRB
| Citation velocity | historical |
|---|---|
| Highly cited | No |