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Caregiving preferences and advance care planning among older adults living with HIV

Bibliographic Data

ID19440663
AuthorsAnnie L Nguyen (0009-0007-0262-3147, University of Southern California, corresponding author), David W Seal (0000-0002-5802-7148, Tulane University), David Seal (0000-0003-4048-2086), Omar Bruce (University of Southern California), Margarida Dalton (Tulane University), Allison Palmer (Tulane University), Marissa Pardini (Tulane University), Bailey Quiroga (Tulane University), Jenica Ryu (University of Southern California), Sarah Soliman (0000-0001-5093-4555, University of Southern California), James C Welty (Tulane University), Imamah Younus (University of Southern California)
Year2019
Volume31
Issue2
Pages243-249
Publication date2019-02-01
Open AccessNo
TypeARTICLE
VenueAIDS Care (JOURNAL)
Journal identifiersISSN: 0954-0121 • E-ISSN: 1360-0451
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/09540121.2018.1515472
PMID30146895
OpenAlexW2888091619
LanguageEN
Citations received1
References cited28

With the increase in the US of the number of older adults living with HIV, more research is needed to understand the caregiving and advance care planning needs of this population. This descriptive study examined the relationship between social support and caregiving preferences and advance care planning. Older adults living with HIV were recruited from clinics in Los Angeles, CA and New Orleans, LA to complete cross-sectional surveys (n = 154). Logistic regression analyses were modeled to determine the characteristics associated with 1) preference for formal short-term term care, 2) preference for formal long-term care, 3) having at least one contact for emergency care, 4) having an advance directive or living will, and 5) having a healthcare proxy or agent. The mean age was 56.8 years. The majority of participants indicated a preference for informal support for both short-term (73.4%) and long-term care (66.2%), 13.2% had no one they could call for emergency care, 26.0% had an advance directive/living will, and 30.5% had a healthcare proxy/agent. In adjusted models, greater social support was associated with preference for informal short-term care and with having at least one emergency contact. Findings suggest that older adults living with HIV prefer informal sources of support for their caregiving needs despite having small social networks and individuals with limited social networks are particularly vulnerable due to lack of access to caregivers in sudden or unexpected health situations

Advance care planning · Directive · Environmental health · Health care · Logistic regression · Long-term care · Palliative care · Population · Preference · Social support · Geriatric Care and Nursing Homes · HIV/AIDS Research and Interventions · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Psychology · Social Psychology · Gerontology

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Citations per year1
Citation span2026 - 2026 (1)
Highly citedNo

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