The burden of secrecy in the management of multimorbidity in older people living with HIV aged 70 and over

The secrecy surrounding HIV continues to be a major concern for older people living with HIV (OPWH) despite their long-term experience of HIV and the presence of other chronic diseases. Our study aims to highlight how the secrecy surrounding HIV can affect the management of the other conditions. The results of this socio-anthropological sub-study of the ANRS EP66 SEPTAVIH study, which assesses frailty in OPWH, are based on in-depth interviews conducted with 20 OPWH with multimorbidities aged 70 years and over and 9 caregivers. Based on a cross-sectional thematic analysis, this study shows that HIV infection differs from other chronic diseases due to the secrecy and stigma associated with HIV. These specific issues associated with HIV complicate the lives of OPWH, depriving them of support from loved ones and forcing them to exclude their general practitioner from their care system. This then causes OPWH with multiple chronic diseases to become socially vulnerable and isolated. Interventions that support the sharing of information on HIV among OPWH and also among caregivers need to be identified as a matter of urgency in order to improve the lives and management of OPWH with multimorbidities.Trial Registration: ClinicalTrials.gov identifier: NCT03958786

Chronic disease · Computer security · Family medicine · Multimorbidity · Psychiatry · Psychological intervention · Qualitative research · Secrecy · Sociology · Thematic analysis · Chronic Disease Management Strategies · Computer Science · HIV/AIDS Research and Interventions · Medicine · Pneumocystis jirovecii pneumonia detection and treatment · Psychology · Gerontology

• A Comparison of HIV Stigma and Disclosure Patterns Between Older and Younger Adults Living with HIV/Aids

  Charles A Emlet•AIDS Patient Care and STDs•2006

  Incluir item

• Challenges and opportunities in examining and addressing intersectional stigma and health

  Open Access•Janet M Turan, Melissa A Elafros et al.•BMC Medicine•2019

  Incluir item

• Examining the associations between HIV-related stigma and health outcomes in people living with HIV/Aids

  Open Access•Salvador Rueda, Sanjana Mitra et al.•BMJ Open•2016

  Incluir item

• A Systematic Review of Prevalence Studies on Multimorbidity

  Open Access•M Fortin, M Stewart et al.•The Annals of Family Medicine•2012

  Incluir item

• Future challenges for clinical care of an ageing population infected with HIV

  Open Access•Mikaela Smit, Kees Brinkman et al.•The Lancet Infectious Diseases•2015

  Incluir item

• Multimorbidity in Older Adults

  Marcel E Salive•Epidemiologic Reviews•2013

  Incluir item

• Frailty in Older Adults

  Linda P Fried, Catherine M Tangen et al.•The Journals of Gerontology…•2001

  Incluir item

• Le vécu et l’implication d’aidants naturels de personnes vivant avec le VIH

  Open Access•Michel Perreault, Natalie Savard•Santé mentale au Québec•2008

  Incluir item

• Singuliers généralistes

  Aline Sarradon-Eck•Singuliers généralistes•2010

  Incluir item

• A meta-analysis of disclosure of one's HIV-positive status, stigma and social support

  Rachel Smith, Kelly Rossetto et al.•AIDS Care•2008

  Incluir item

• Meta-analysis of health and demographic correlates of stigma towards people living with HIV

  C Logie, T M Gadalla•AIDS Care•2009

  Incluir item

• Exploring the Impact of Experiences with Everyday and Major Discrimination and HIV-Related Stigma on Engagement in HIV Care Among Older African Americans Living with HIV

  Open Access•Timothy N Crawford, M Silverstein et al.•Journal of Racial and Ethnic…•2022

  Incluir item

• Social determinants of multimorbidity and multiple functional limitations among the ageing population of England, 2002–2015

  Open Access•Leo Singer, Mark Green et al.•SSM - Population Health•2019

  Incluir item

• Aging with HIV

  Open Access•Rifqah Abeeda Roomaney, Brian Van Wyk et al.•International Journal of…•2022

  Incluir item

• Stigma, Secrecy, and Discrimination

  Open Access•Deepa Rao, John B Pryor et al.•AIDS and Behavior•2007

  Incluir item

• Was it a Mistake to Tell Others That You are Infected with HIV?”

  Open Access•Emilie Henry, Adeline Bernier et al.•AIDS and Behavior•2014

  Incluir item

• HIV Stigma Mechanisms and Well-Being Among PLWH

  Open Access•Valerie A Earnshaw, L R Smith et al.•AIDS and Behavior•2013

  Incluir item

• Sexualité, secrets et séropositivité

  Francesca Poglia Mileti, Michela Villani et al.•Hermès•2014

  Incluir item

• Stigma

  Arjan E R Bos, John B Pryor et al.•Basic and Applied Social Psychology•2013

  Incluir item

• The value of reducing HIV stigma

  Open Access•Robert J Brent•Social Science & Medicine•2016

  Incluir item

• The potential of transdisciplinary research for sustaining and extending linkages between the health and social sciences

  Open Access•Patricia L Rosenfield•Social Science & Medicine•1992

  Incluir item