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“How can I tell?” Consequences of HIV status disclosure among couples in eastern African communities in the context of an ongoing HIV “test-and-treat” trial

Bibliographic Data

ID19442129
AuthorsIrene Maeri (Kenya Medical Research Institute), Alison El Ayadi (Reproductive Science Center), Monica Getahun (0000-0002-2116-2637, Reproductive Science Center), Edwin D Charlebois (0000-0001-7237-2119, University of California, San Francisco), Edwin Charlebois, Cecilia Akatukwasa (0000-0002-1157-9797, Infectious Diseases Research Collaboration), Dennis Tumwebaze (Infectious Diseases Research Collaboration), Harriet Itiakorit (Infectious Diseases Research Collaboration), Lawrence Owino (0000-0002-3817-4386, Kenya Medical Research Institute), Dalsone Kwarisiima (0000-0003-2886-9261, Makerere University), Emmanuel Ssemmondo (0000-0002-2796-5027, Infectious Diseases Research Collaboration), Norton Sang (0000-0002-0092-7776, Kenya Medical Research Institute), Jane Kabami (0000-0002-0265-3174, Infectious Diseases Research Collaboration), Tamara D Clark (0000-0003-1109-6039, University of California, San Francisco), Maya L Petersen (0000-0002-5505-153X, University of California, Berkeley), Maya Petersen (0000-0003-4941-2041), Craig R Cohen (0000-0001-8654-6634, Reproductive Science Center), Elizabeth A Bukusi (0000-0002-2031-2808, Kenya Medical Research Institute), Moses R Kamya (0000-0001-9106-4234, Infectious Diseases Research Collaboration), Moses Kamya, Diane V Havlir (0000-0003-0761-3136, University of California, San Francisco), Diane Havlir, Carol S Camlin (0000-0001-5615-1164, University of California, San Francisco, corresponding author), the SEARCH Collaboration
Year2016
Volume28
Issuesup3
Pages59-66
Publication date2016-06-02
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueAIDS Care (JOURNAL)
Journal identifiersISSN: 0954-0121 • E-ISSN: 1360-0451
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/09540121.2016.1168917
PMID27421052
OpenAlexW2474982830
LanguageEN
Citations received26
References cited26

People living with HIV/AIDS anticipate HIV-related stigma and fear disclosure to intimate partners. Yet, disclosure is critical to reducing HIV transmission and improving care engagement. This qualitative study characterized HIV disclosure experiences and normative beliefs among couples in communities participating in an HIV test-and-treat trial in Kenya and Uganda (Sustainable East Africa Research in Community Health, NCT#01864603). In-depth interviews were conducted with care providers (n = 50), leaders (n = 32) and members (n = 112) of eight communities. Data were analyzed using grounded theoretical approaches and Atlas.ti software. Findings confirmed gender differences in barriers to disclosure: while both men and women feared blame and accusation, women also feared violence and abandonment ("I did not tell my husband because [what if] I tell him and he abandons me at the last moment when I am in labor?"). Positive consequences included partner support for increased care-seeking and adherence ("My husband keeps on reminding me 'have you taken those drugs?'") Yet negative consequences included partnership dissolution, blame, and reports of violence ("some men beat their wives just because of that [bringing HIV medications home]"). Among HIV-infected individuals in discordant relationships, men more often reported supportive spouses ("we normally share [HIV-risk-reduction strategies] since I have been infected and she is HIV negative"), than did women ("my husband refused to use condoms and even threatened to marry another wife"). Care providers lent support for HIV-positive women who wanted to engage partners in testing but feared negative consequences: "They engaged the two of us in a session and asked him if we could all test." Findings demonstrate differing experiences and support needs of women and men living with HIV in eastern Africa, with HIV-positive women in discordant couples particularly vulnerable to negative consequences of disclosure. Efforts to strengthen capacity in health systems for gender-sensitive clinician- or counselor-assisted disclosure should be accelerated within test-and-treat efforts

Blame · Condom · Domestic violence · Environmental health · Family medicine · Poison control · Political science · Qualitative research · Serodiscordant · Sociology · Spouse · Suicide prevention · Adolescent Sexual and Reproductive Health · HIV, Drug Use, Sexual Risk · HIV/AIDS Research and Interventions · Medicine · Psychology · Social Psychology

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Unique citing works26
Citations per year2,89
Citation span2017 - 2026 (10)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 25
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