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When Family Means More (or Less) Than Genetics

The Intersection of Culture, Family, and Genomics

Bibliographic Data

ID19463157
AuthorsBarbara Burns Mcgrath (University of Washington, corresponding author), Karen L Edwards (0000-0001-7977-2182, University of Washington)
Year2009
Volume20
Issue3
Pages270-277
Publication date2009-07-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueJournal of Transcultural Nursing (JOURNAL)
Journal identifiersISSN: 1043-6596 • E-ISSN: 1552-7832
PublisherSAGE Publications (PUBLISHER • US)
DOI10.1177/1043659609334931
PMID19398610
PMCIDPMC2773542
OpenAlexW2150337991
LanguageEN
Citations received4
References cited37

There is renewed interest in the use of family history to predict individual disease susceptibility, and as a result, standardized online family history tools are being developed and marketed as a “new genetic test.” It is not known how cultural variations in definitions of family influence collection of these data or what is the best format to use. This is significant given that the populations who carry the greatest burden of the target diseases have not been considered in efforts to test these tools. A qualitative study with a convenience sample of 19 Japanese Americans and Samoan Americans, two groups at high risk for type 2 diabetes, was conducted to explore the process of collecting family history. A particularly strong finding was the high degree of acceptance experienced by the participants with the process and their pride in visualizing their family graphically displayed in pedigrees. It was also found that Samoans included those linked by nonbiological ties in their families, which reflects their cultural practices. Further research is needed to assess the most effective and efficient way to gather family history given the complexities surrounding the deceptively simple concept of family

Biology · Extended family · Family history · Genealogy · Pedigree chart · Pride · Samoan · BRCA gene mutations in cancer · History · Medicine · Nutrition, Genetics, and Disease · Psychology · Race, Genetics, and Society · Genetics · Gerontology

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Unique citing works4
Citations per year0,25
Citation span2010 - 2018 (9)
Citation velocityhistorical
Highly citedNo
Citation typesNeutral: 4

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