Exploring Transition to Self-Management Within the Culture of Sickle Cell Disease
Bibliographic Data
| ID | 19463288 |
|---|---|
| Authors | Nancy Labore (University of Massachusetts Lowell, MA, USA, corresponding author), Barbara Mawn (University of Massachusetts Lowell, MA, USA), Jane Dixon (0000-0003-4658-4307, Yale University, New Haven, CT, USA), Biree Andemariam (0000-0002-2540-6037, University of Connecticut Health Center, Farmington, CT, USA) |
| Year | 2017 |
| Volume | 28 |
| Issue | 1 |
| Pages | 70-78 |
| Publication date | 2017-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Transcultural Nursing (JOURNAL) |
| Journal identifiers | ISSN: 1043-6596 • E-ISSN: 1552-7832 |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1177/1043659615609404 |
| PMID | 26446139 |
| OpenAlex | W2246413752 |
| Language | EN |
| Citations received | 1 |
| References cited | 44 |
Purpose: The aim of this study was to explore the meaning of transition to self-management in sickle cell disease. Design/Method: Twelve audio-recorded semistructured interviews were conducted with a sample of 21- to 25-year-olds recruited from a comprehensive sickle cell center in the northeast region of the United States. Data were analyzed using an existential framework according to van Manen’s phenomenological method. Findings: The meaning of transition to self-management was found in lived time, space, body, and human relationship. The emerging themes highlighted in this article include: Best Mother Ever, Growing up in the Hospital, I’m Not Trying that Again, Doing it on My Own, Living Day-by-Day, and Not a Kid any Longer. The themes reflected meaning and insight into this unique experience. Conclusion/Practice Implications: Study results emphasize the culturally constructed meaning of transition to sickle cell disease self-management and need to integrate transcultural perspectives into nursing practice to support this emerging phenomenon
Biology · Disease · Intensive care medicine · Pathology · Self-management · Computer Science · Cultural Competency in Health Care · Hemoglobinopathies and Related Disorders · Medicine · Religion, Spirituality, and Psychology · Genetics
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| Unique citing works | 1 |
|---|---|
| Citations per year | 0,17 |
| Citation span | 2020 - 2020 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |