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I Just Took a DNA Test—Turns Out, I'm 100% Breaching My Donor Anonymity Contract

Direct-to-Consumer DNA Testing and Parental Medical-Decision-Making

Bibliographic Data

ID19466301
AuthorsYork York (corresponding author)
Year2021
Volume28
Issue2
Pages293
Publication date2021-01-01
Open AccessNo
TypeARTICLE
VenueIndiana Journal of Global Legal Studies (JOURNAL)
Journal identifiersISSN: 1080-0727 • E-ISSN: 1543-0367
PublisherIndiana University Press (PUBLISHER • US)
DOI10.2979/indjglolegstu.28.2.0293
OpenAlexW3203858698
LanguageEN
Citations received1
References cited1

Part I of this note provides a brief history of assisted reproductive technology and its increased use throughout the world, illustrating the growing number of donor-conceived children and the related importance of knowing genetic information. Part I also surveys regulations concerning donor anonymity in the United States and the United Kingdom to illustrate different jurisdictions' approaches to the regulation of donor anonymity. This note uses the United Kingdom as a model of countries that have prohibited sperm donor anonymity. Part II of this note discusses direct-to-consumer DNA testing, specifically 23andMe's products. This note selects 23andMe as the direct-to-consumer company for its analysis because of the company's dominance in the global market and the regulation of certain kits as "medical devices," 35 which suggests parents' rights to have this test performed on their minor children. Part III of this note explores parental decision-making abilities as they relate to medical decisions concerning minors. Part IV of this note discusses the interplay between donor anonymity and DNA testing, both in the United States and the United Kingdom.\nThe conclusion of this note discusses possible solutions for the issues presented by regulations concerning donor-conceived genetic information. It also highlights the benefits of allowing access to genetic information of donor-conceived individuals, specifically by allowing parents to genetically test their donor-conceived children. Ultimately, the analysis concludes that donor anonymity is no longer feasible. Instead, this note suggests countries continue to adopt and amend regulations that enable donor-conceived individuals to have access to their own genetic information without fear of redress against them, or their parents

Anonymity · Biology · Business · Daughter · Genealogy · Political science · History · Law · Legal Systems and Judicial Processes · Psychology · Reproductive Health and Technologies

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    Open Access•Katharine Gelber•Australian Journal of Political…•2026

  • Legislation of direct-to-consumer genetic testing in Europe

    Open Access•Louiza Kalokairinou, Heidi Howard et al.•Journal of Community Genetics•2017

Citations per year1
Citation span2026 - 2026 (1)
Highly citedNo

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