A Qualitative Exploration of Stroke Survivors' Experiences of Using a Stroke Helpline

Bibliographic Data

ID19505871
AuthorsMuneeba T Chaudhry (0000-0001-6663-9905, Discipline of Physiotherapy, Graduate School of Health University of Technology Sydney Sydney New South Wales Australia), Alana B McCambridge (0000-0001-6822-4199, Discipline of Physiotherapy, Graduate School of Health University of Technology Sydney Sydney New South Wales Australia), Esminio I I Rivera (Discipline of Physiotherapy, Graduate School of Health University of Technology Sydney Sydney New South Wales Australia), Scott William (0000-0002-2836-9606, Centre for Chronic & Complex Care Research, School of Nursing, Blacktown Hospital University of Wollongong & Western Sydney Local Health District Sydney New South Wales Australia), Peter Stubbs (0000-0003-4555-8019, Discipline of Physiotherapy, Graduate School of Health University of Technology Sydney Sydney New South Wales Australia), Peter W Stubbs (University of Technology Sydney), Arianne P Verhagen (0000-0002-6195-0128, Discipline of Physiotherapy, Graduate School of Health University of Technology Sydney Sydney New South Wales Australia), Caleb Ferguson (0000-0002-2417-2216, Centre for Chronic & Complex Care Research, School of Nursing, Blacktown Hospital University of Wollongong & Western Sydney Local Health District Sydney New South Wales Australia, corresponding author)
Year2024
Volume27
Issue4
Pagese14141-e14141
Publication date2024-08-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.14141
PMID38990166
OpenAlexW4400537253
LanguageEN
Citations received1
References cited28

BACKGROUND: StrokeLine is a stroke-specific helpline used by stroke survivors and their families in Australia to access professional support. There has been little research exploring stroke survivors' experiences of using helplines and their perceived impact on their stroke recovery. AIM: The aim of this study is to explore the reasons prompting stroke survivors to call StrokeLine and their experiences and to describe the perceived impact of calling StrokeLine on their recovery. METHODS: An exploratory descriptive qualitative study was undertaken using thematic analysis of data collected through semi-structured interviews of stroke survivors between December 2020 and May 2022. Participants were recruited using purposive sampling. Interviews were conducted via audio-recorded Zoom conference calling and transcribed verbatim for thematic analysis. RESULTS: A total of eight callers (four men and women women) participated, with the time since stroke ranging from 3.5 months to 5 years. Four major themes were identified, including 17 sub-themes. Key themes included (1) factors prompting use of StrokeLine; (2) experience of using StrokeLine; (3) perceived impact of using StrokeLine; and (4) conceptualising StrokeLine service provision. CONCLUSIONS: Participants perceived their experience of contacting StrokeLine as having a positive impact on their stroke recovery, leaving them feeling empowered and motivated to self-manage their condition. PATIENT OR PUBLIC CONTRIBUTION: Stroke survivors with lived experience influenced the conceptualisation of this study through conversations with consumers and the Stroke Foundation. Eight stroke survivors were involved as participants in the research study

Exploratory research · Feeling · Physical therapy · Qualitative research · Stroke recovery · Thematic analysis · Acute Ischemic Stroke Management · Dementia and Cognitive Impairment Research · Medicine · Psychology · Social Psychology · Stroke Rehabilitation and Recovery · Rehabilitation

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