Expect the unexpected
Patients’ and families’ expectations and experiences of new clinical procedures
Bibliographic Data
| ID | 19505885 |
|---|---|
| Authors | Kathryn Ehrich (Women's Health Academic Centre King's College London UK), Luke Cowie (Institute of Primary Care & Public Health Cardiff University School of Medicine Cardiff UK), Jane Sandall (0000-0003-2000-743X, Women's Health Division of Women's Health King's College London, Women's Health Academic Centre, King's Health Partners, North Wing, St. Thomas' Hospital London UK) |
| Year | 2015 |
| Volume | 18 |
| Issue | 5 |
| Pages | 918-928 |
| Publication date | 2015-10-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health Expectations (JOURNAL) |
| Journal identifiers | ISSN: 1369-6513 • E-ISSN: 1369-7625 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/hex.12065 |
| PMID | 23614706 |
| OpenAlex | W2065190355 |
| Language | EN |
| References cited | 24 |
BACKGROUND: Early stage clinical innovation often occurs 'under the radar' of governance systems for established procedures. Previously impossible or unavailable techniques still being developed involve additional uncertainty and unknown risks and benefits compared with standard procedures. Patient and family expectations, perceptions and experiences of these new procedures and their possible impacts on aspects of patient safety are under-researched. OBJECTIVE: To explore patient and family expectations and experiences of undergoing new clinical procedures. SETTING: A large UK Hospital NHS Foundation Trust with a range of clinically innovative specialties. METHODS: We interviewed 15 patients who received new clinical procedures in a variety of medical and surgical specialties. Qualitative interviews were used to facilitate in-depth exploration of patient and family views and experiences. Topics included patient and family access to and expectations of the procedure, informed decision making regarding acceptance of new procedures and post-procedure experiences. RESULTS: Some patients sought out specific interventions, while others accepted new treatment options that clinicians proposed. Most participants reported that explanations about the procedure and risks were clear, and there were opportunities to ask questions prior to the procedure. Most participants also regarded their procedures as successful. However, post-procedure information follow-up was often reported as lacking and some outcomes were considerably problematic and raised patient safety issues. DISCUSSION: The importance of patients' and family views in evaluating health care are increasingly recognized. We discuss the implications of our findings for informed decision making and post-intervention follow-up
Family medicine · Health care · Patient safety · Psychological intervention · Qualitative research · Ethics and Legal Issues in Pediatric Healthcare · Medicine · Nursing · Patient Safety and Medication Errors · Patient-Provider Communication in Healthcare · Psychology
Patient Participation
The qualitative content analysis process
Do physicians’ recommendations pull patients away from their preferred treatment options
‘They’re doing surgery on two people’
Communicating uncertainty can lead to less decision satisfaction
Nursing shortages and patient safety problems in hospital care
The Professional Guinea Pig
The Courage to Fail
Experiment Perilous
The Role of Expectations in Patients?? Reports of Post-Operative Outcomes and Improvement Following Therapy
Consumerism, reflexivity and the medical encounter
Distributed decision making
| Citation velocity | historical |
|---|---|
| Highly cited | No |