Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners

Datos Bibliográficos

ID19506322
AutoresJahanara Miah (0000-0002-2122-7007, Division of Neuroscience and Experimental Psychology University of Manchester Manchester UK), Piers Dawes (0000-0003-3180-9884, Manchester Centre for Audiology and Deafness (ManCAD) Manchester Academic Health Science Centre University of Manchester Manchester UK, autor de correspondencia), Iracema Leroi (0000-0003-1822-3643, Division of Neuroscience and Experimental Psychology University of Manchester Manchester UK), Bella Starling (0000-0001-9981-5637, Public Programmes Team, Research and Innovation Division Manchester University NHS Foundation Trust and the University of Manchester Manchester UK), Katherine Lovell (0000-0001-8821-895X, Division of Nursing Midwifery and Social Work Manchester UK), Owen Price (0000-0001-5327-568X, Division of Nursing Midwifery and Social Work Manchester UK), Andrew Grundy (0000-0002-6562-6894, School of Health Sciences University of Nottingham Nottingham UK), Suzanne Parsons (0000-0002-5151-4840, Public Programmes Team, Research and Innovation Division Manchester University NHS Foundation Trust and the University of Manchester Manchester UK)
Año2020
Volumen23
Número5
Páginas1177-1190
Fecha de publicación2020-10-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaHealth Expectations (JOURNAL)
Identificadores de la revistaISSN: 1369-6513 • E-ISSN: 1369-7625
EditorialWiley (PUBLISHER • GB)
DOI10.1111/hex.13096
PMID32810357
OpenAlexW3081364107
IdiomaEN
Citas recibidas3
Referencias citadas18

BACKGROUND: Best-practice guidelines recommend that appropriate support be provided to public contributors to facilitate their involvement in research. One form of support is research awareness training. Older people with dementia and care partners were involved in four Research User Groups (RUGs) in the UK, France, Cyprus and Greece. We delivered research awareness training (RAT) to the RUGs. The aim of this study was to evaluate the acceptability and perceived outcomes of the training from the perspective of RUG members. METHODS: At the end of each research training session, participants completed the Training Acceptability Rating Scale-section 2, which records the respondent's impressions of the training process and the outcomes of training. Participants were also invited to take part in semi-structured interviews at the end of the programme. RESULTS: Thirty-four RUG members completed the TARS-section 2 with 23 completing semi-structured interviews. Over two-thirds (67%) of participants rated their overall satisfaction with the RAT 'a great deal'. Qualitative responses indicated that participants found group work to be beneficial for learning, the structure of training activities and topics covered appropriate. The type and format of the training materials were viewed as helpful, and they valued the new knowledge gained. CONCLUSIONS: The training contents were applicable, useful and relevant to the participants' role within the research. We highlight the importance of facilitating participation by (a) fostering awareness of relevant research issues and (b) tailoring delivery of training according to the needs of the participants

Dementia · Medical education · Qualitative research · Respondent · Dementia and Cognitive Impairment Research · Health Sciences Research and Education · Medicine · Mental Health and Patient Involvement · Nursing · Psychology