Evaluating patient and public involvement in health research
From theoretical model to practical workshop
Bibliographic Data
| ID | 19506502 |
|---|---|
| Authors | Andy Gibson (0000-0003-4008-1928, Department of Health and Applied Sciences University of the West of England Bristol UK, corresponding author), Jo Welsman (0000-0002-8877-3926, Centre for Biomedical Modelling University of Exeter Exeter UK), Nicky Britten (0000-0002-7533-414X, Institute of Health Research University of Exeter Medical School Exeter UK) |
| Year | 2017 |
| Volume | 20 |
| Issue | 5 |
| Pages | 826-835 |
| Publication date | 2017-10-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health Expectations (JOURNAL) |
| Journal identifiers | ISSN: 1369-6513 • E-ISSN: 1369-7625 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/hex.12486 |
| PMID | 28664563 |
| OpenAlex | W2724811665 |
| Language | EN |
| Citations received | 25 |
| References cited | 10 |
BACKGROUND: There is a growing literature on evaluating aspects of patient and public involvement (PPI). We have suggested that at the core of successful PPI is the dynamic interaction of different forms of knowledge, notably lay and professional. We have developed a four-dimensional theoretical framework for understanding these interactions. AIM: We explore the practical utility of the theoretical framework as a tool for mapping and evaluating the experience of PPI in health services research. METHODS: We conducted three workshops with different PPI groups in which participants were invited to map their PPI experiences on wall charts representing the four dimensions of our framework. The language used to describe the four dimensions was modified to make it more accessible to lay audiences. Participants were given sticky notes to indicate their own positions on the different dimensions and to write explanatory comments if they wished. Participants' responses were then discussed and analysed as a group. RESULTS: The three groups were distinctive in their mapped responses suggesting different experiences in relation to having a strong or weak voice in their organization, having few or many ways of getting involved, addressing organizational or public concerns and believing that the organization was willing to change or not. DISCUSSION: The framework has practical utility for mapping and evaluating PPI interactions and is sensitive to differences in PPI experiences within and between different organizations. The workshops enabled participants to reflect collaboratively on their experiences with a view to improving PPI experiences and planning for the future
Data science · Knowledge management · Management science · Public health · Computer Science · Engineering · Medicine · Mental Health and Patient Involvement · Nursing · Participatory Visual Research Methods · Patient-Provider Communication in Healthcare · Psychology
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| Unique citing works | 25 |
|---|---|
| Citations per year | 3,57 |
| Citation span | 2019 - 2026 (8) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 23 |