‘Dignity and respect’
An example of service user leadership and co‐production in mental health research
Bibliographic Data
This paper explores the methodological aspects of a user‐led study investigating mental health service user experiences of targeted violence and abuse (often called 'hate crime'). 'Keeping Control' was a 16‐month qualitative study, undertaken in the context of adult safeguarding reforms in England. By collecting data on service user concepts and experiences, the research sought to address a gap in research and practice knowledge relating to targeted violence, abuse and hostility against people with mental health problems. In this paper, we discuss the significance of the design and methodology used for this study, with a particular focus on the interviews with service users. The research was both user‐led and carried out in collaboration with practitioners and academics, a form of research co‐production. Our aim is to inform researchers, practitioners and policymakers about the value of user leadership in co‐productive research with practitioners, particularly for a highly sensitive and potentially distressing topic
Business · Dignity · Focus group · Hostility · Mental health · Political science · Psychiatry · Public relations · Qualitative research · Safeguarding · Social science · Sociology · Elder Abuse and Neglect · Healthcare innovation and challenges · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Social Psychology
It’s like an oak tree growing slowly across a barbed wire fence
It’s a Living Experience”
Organizing for co-production
I hate having my mental health’ – Making sense of mental health through coproduction and visual methods with young people with complex needs
Practitioner perspectives on service users experiences of targeted violence and hostility in mental health and adult safeguarding
Findings from a European, cross-national project study on service user participation
Implementing peer support work in mental health care in Germany
Exploring the impact of engagement in mental health and substance use research
Mitigating unintended consequences of co‐design in health care
Co-production in mental health care, research, and education
Madness' after the war in Bosnia and Herzegovina - challenging dominant understandings of distress
Creative Ecologies in Borderline Personality Disorder Research
Participation in trauma research
What is the impact of mental health-related stigma on help-seeking? A systematic review of quantitative and qualitative studies
Qualitative data analysis for applied policy research
‘What difference does it make?’ Finding evidence of the impact of mental health service user researchers on research into the experiences of detained psychiatric patients
A review of factors which potentially influence decisions in adult safeguarding investigations
Enabling risk and ensuring safety
The right to take risks
Investigating models of adult safeguarding in England – a mixed-methods approach
Involvement of service users in adult safeguarding
Adult protection and effective action in tackling violence and hostility against disabled people
Producing different analytical narratives, coproducing integrated analytical narrative
Service user/survivor-led research in mental health
Survivor research and Mad Studies
Supporting the sustainability of Mad Studies and preventing its co-option
Keeping Control”
What is an ‘adult protection’ issue? Victims, perpetrators and the professional construction of adult protection issues
Power dynamics and collaborative mechanisms in co-production and co-design processes
Safeguarding and System Change
Patient and Public Involvement in the Coproduction of Knowledge
| Unique citing works | 12 |
|---|---|
| Citations per year | 2 |
| Citation span | 2020 - 2026 (7) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 11 |