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Involvement of children and young people in the conduct of health research

A rapid umbrella review

Bibliographic Data

ID19506776
AuthorsKatherine A Wyatt (0000-0002-0836-797X, Murdoch Children's Research Institute Parkville Victoria Australia), Jessica Bell (0000-0002-3433-0265, School of Law University of Warwick Coventry UK), Jason Cooper (0000-0003-0818-8688, Murdoch Children's Research Institute Parkville Victoria Australia), Leanne Constable (0000-0002-5692-8882, Murdoch Children's Research Institute Parkville Victoria Australia), William Siero (0009-0007-0061-9339, Murdoch Children's Research Institute Parkville Victoria Australia), Carla Pozo Jeria (0000-0001-9097-3516, Murdoch Children's Research Institute Parkville Victoria Australia), Simone Darling (0000-0002-0213-1309, Murdoch Children's Research Institute Parkville Victoria Australia), Rachel Smith (0000-0002-6838-1319, Murdoch Children's Research Institute Parkville Victoria Australia), Elizabeth K Hughes (0000-0002-4377-5610, Murdoch Children's Research Institute Parkville Victoria Australia, corresponding author)
Year2024
Volume27
Issue3
Pagese14081-e14081
Publication date2024-06-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.14081
PMID38845155
OpenAlexW4399443713
LanguageEN
Citations received8
References cited113

Focus group · General partnership · Medical education · MEDLINE · Participatory action research · Photovoice · Political science · Qualitative research · Social science · Sociology · Systematic review · Thematic analysis · Children's Rights and Participation · Computer Science · Medicine · Mental Health and Patient Involvement · Participatory Visual Research Methods · Psychology

  • Group Poetry and Quilt‐Making –Creative Public Involvement Approaches to Contentious Concepts in Frailty Research

    Open Access•William Lammons, Lily Arnold et al.•Health Expectations•2026

  • Patient and Public Involvement and Engagement in Pediatric Health Research

    Open Access•Veronika Stadler, Rebeca Mozun et al.•Health Expectations•2026

  • Involvement of children and young people in the conduct of health research

    Open Access•Katherine A Wyatt, Jessica Bell et al.•Health Expectations•2024

  • Patient and Public Involvement in Paediatric Pragmatic Randomized Controlled Trials

    Open Access•Shelley Vanderhout, Shipra Taneja et al.•Children•2025

  • It’s Not Healthy to Be Too Large”—A Qualitative Study Using Participatory Methods to Explore Children’s and Adolescents’ Perspectives on Obesity Treatment and Body Image

    Open Access•Tove Langlo Drilen, Trine Tetlie Eik‐Nes et al.•Children•2025

  • Generation Victoria (GenV)

    Open Access•Elizabeth K Hughes, William Siero et al.•BMC Public Health•2025

  • Ladders, trees and matrixes

    Open Access•Holly McAlister, Sharynne Mcleod et al.•Child Language Teaching and Therapy•2026

  • Exploring similarities and differences in how researchers and young people understand key terms in youth mental-health research

    Open Access•Raginie Duara, Georgia Pavlopoulou et al.•Humanities and Social Sciences…•2025

  • A Systematic Review of Youth Participatory Action Research (Ypar) in the United States

    Open Access•Yolanda Anyon, Kimberly Bender et al.•Health Education & Behavior•2018

  • GRIPP2 reporting checklists

    Open Access•Sophie Staniszewska, Jo Brett et al.•Research Involvement and Engagement•2017

  • Robis

    Open Access•Penny Whiting, Jelena Savović et al.•Journal of Clinical Epidemiology•2016

  • Engaging Youth in Participatory Research and Evaluation

    Jane L Powers, Jane Powers et al.•Journal of Public Health…•2006

  • Working With Young Children as Co-Researchers

    Laura Lundy, Lesley Mcevoy et al.•Early Education and Development•2011

  • Youth-Led Participatory Action Research

    Open Access•Emily J Ozer•Advances in Child Development and…•2016

  • The PRISMA 2020 statement

    Open Access•Matthew J Page, Joanne E McKenzie et al.•BMJ•2021

  • Shifting From Tokenism to Meaningful Adolescent Participation in Research for Obesity Prevention

    Open Access•Mariam Mandoh, Julie Redfern et al.•Frontiers in Public Health•2021

  • Measurement for Change

    Open Access•Joost De Laat, James Radner et al.•Frontiers in Public Health•2023

  • Public involvement in the governance of population-level biomedical research

    Open Access•Sonja Erikainen, Phoebe Friesen et al.•Journal of Medical Ethics•2021

  • Photovoice

    Open Access•Caroline Wang, Mary Ann Burris•Health Education & Behavior•1997

  • Research‐ and health‐related youth advisory groups in Canada

    Open Access•Michelle Chan, Shannon D Scott et al.•Health Expectations•2021

  • Patient and Public Involvement of young people with a chronic condition in projects in health and social care

    Open Access•F van Schelven, Hennie Boeije et al.•Health Expectations•2020

  • Young peoples' involvement in welfare service development—Is voice enough?—A thematic synthesis of qualitative studies

    Open Access•Line Nortvedt, Cecilie Fromholt Olsen et al.•Health Expectations•2022

  • The use of arts‐based methodologies and methods with young people with complex psychosocial needs

    Open Access•Sally Nathan, Michael Hodgins et al.•Health Expectations•2023

  • Information and involvement

    Open Access•Hazel Thornton•Health Expectations•2001

  • Involvement of children and young people in the conduct of health research

    Open Access•Katherine A Wyatt, Jessica Bell et al.•Health Expectations•2024

  • Using the Public Involvement Impact Assessment Framework to assess the impact of public involvement in a mental health research context

    Open Access•Michelle Collins, Rita Long et al.•Health Expectations•2018

  • Youth engagement in mental health research

    Open Access•Erin McCabe, Mungunzul Amarbayan et al.•Health Expectations•2023

  • Child/youth, family and public engagement in paediatric services in high‐income countries

    Open Access•Gagan Gurung, Amy Richardson et al.•Health Expectations•2020

  • A Review of Approaches, Strategies and Ethical Considerations in Participatory Research With Children

    Open Access•M Montreuil, Aline Bogossian et al.•International Journal of…•2021

  • Methods and Ethics in Qualitative Research Exploring Young Children’s Voice

    Open Access•Yihan Sun, Claire Blewitt et al.•International Journal of…•2023

  • Research as intervention? Exploring the health and well-being of children and youth facing global adversity through participatory visual methods

    Open Access•Miranda D’amico, Myriam Denov et al.•Global Public Health•2016

  • Th Annual Conference of the International Society for Quality of Life Research

    Open Access•E B M Elsman, M Al Baaj et al.•Quality of Life Research•2018

  • Youth Participatory Approaches and Health Equity

    Open Access•Emily J Ozer, Michelle Abraczinskas et al.•American Journal of Community…•2020

  • A Qualitative Systematic Review of Youth Participatory Action Research Implementation in U.S. High Schools

    Open Access•Amy J Anderson•American Journal of Community…•2020

  • Community‐based Youth Participatory Action Research studies with a focus on youth health and well‐being

    Open Access•Cátia Branquinho, Gina Tomé et al.•Journal of Community Psychology•2020

  • A scoping review

    Open Access•Leah Levac, Scott T Roni et al.•Journal of Community Psychology•2019

  • Children’s Involvement in Research—A Review and Comparison with Service User Involvement in Health and Social Care

    Open Access•Clara Rübner Jørgensen•Social Sciences•2019

  • Research by children

    Priscilla Alderson•International Journal of Social…•2001

  • Engaging with children as co-researchers

    Caroline Bradbury-Jones, Julie Taylor•International Journal of Social…•2013

  • Involving Young Service Users as Co-Researchers

    Hugh Mclaughlin•The British Journal of Social Work•2005

  • Scoping studies

    Hilary Arksey, Lisa O’malley•International Journal of Social…•2005

  • Children's rights and research processes

    Open Access•Laura Lundy, Lesley Mcevoy•Childhood•2012

Unique citing works8
Citations per year4
Citation span2024 - 2026 (3)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 5
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