Healthcare in a land called PeoplePower

Nothing about me without me

Bibliographic Data

ID19507260
AuthorsTom Delbanco (0000-0001-6755-9333, Beth Israel Deaconess Medical Center), Donald M Berwick (0000-0001-9507-4157, Institute for Healthcare Improvement), Jo Ivey Boufford (0000-0002-2640-8835, Wagner College), Edgman‐Levitan Edgman‐Levitan (Picker Institute Europe), Günter Ollenschläger (German Agency for Quality in Medicine), Diane Plamping (Mile End Hospital), Richard G Rockefeller (Creative Commons)
Year2001
Volume4
Issue3
Pages144-150
Publication date2001-09-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1046/j.1369-6513.2001.00145.x
PMID11493320
OpenAlexW2134079888
LanguageEN
Citations received14
References cited8

In a 5‐day retreat at a Salzburg Seminar attended by 64 individuals from 29 countries, teams of health professionals, patient advocates, artists, reporters and social scientists adopted the guiding principle of ‘nothing about me without me’ and created the country of PeoplePower. Designed to shift health care from ‘biomedicine’ to ‘infomedicine’, patients and health workers throughout PeoplePower join in informed, shared decision‐making and governance. Drawing, where possible, on computer‐based guidance and communication technologies, patients and clinicians contribute actively to the patient record, transcripts of clinical encounters are shared, and patient education occurs primarily in the home, school and community‐based organizations. Patients and clinicians jointly develop individual ‘quality contracts’, serving as building blocks for quality measurement and improvement systems that aggregate data, while reflecting unique attributes of individual patients and clinicians. Patients donate process and outcome data to national data banks that fuel epidemiological research and evidence‐based improvement systems. In PeoplePower hospitals, constant patient and employee feedback informs quality improvement work teams of patients and health professionals. Volunteers work actively in all units, patient rooms are information centres that transform their shape and decor as needs and individual preferences dictate, and arts and humanities programmes nourish the spirit. In the community, from the earliest school days the citizenry works with health professionals to adopt responsible health behaviours. Communities join in selecting and educating health professionals and barter systems improve access to care. Finally, lay individuals partner with professionals on all local, regional and national governmental and private health agencies

Health care · Medical education · Political science · Public relations · Health Literacy and Information Accessibility · Medicine · Mental Health and Patient Involvement · Nursing · Patient-Provider Communication in Healthcare · Psychology

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