Multiple stakeholders' perspectives on patient and public involvement in community mental health services research

A qualitative analysis

Dados Bibliográficos

ID19507872
AutoresSosei Yamaguchi (0000-0002-0579-4431, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan, autor correspondente), Makiko Abe (0000-0002-5289-7230, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan), Takayuki Kawaguchi (0000-0002-2063-9106, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan), Momoka Igarashi (0000-0003-4352-3365, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan), Takuma Shiozawa (0000-0002-9307-576X, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan), Makoto Ogawa (0000-0002-3781-2016, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan), Naonori Yasuma (0000-0002-1216-7639, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan), Sayaka Sato (0000-0002-3386-9576, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan), Yuki Miyamoto (0000-0002-0567-6881, Department of Psychiatric Nursing, Graduate School of Medicine The University of Tokyo Bunkyo Tokyo Japan), Chiyo Fujii (0000-0003-1715-1940, Department of Community Mental Health and Law, National Institute of Mental Health National Center of Neurology and Psychiatry Kodaira Tokyo Japan)
Ano2022
Volume25
Fascículo4
Páginas1844-1860
Data de publicação2022-08-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoHealth Expectations (JOURNAL)
Identificadores do periódicoISSN: 1369-6513 • E-ISSN: 1369-7625
EditoraWiley (PUBLISHER • GB)
DOI10.1111/hex.13529
PMID35657162
OpenAlexW4281720098
IdiomaEN
Citações recebidas4
Referências citadas39

BACKGROUND: Patient and public involvement (PPI) has become essential in health research. However, little is known about multiple stakeholders' perspectives on the implementation of PPI in community mental health research settings. The present study aimed to qualitatively analyse multiple stakeholders' views on PPI, including potential concerns, barriers and approaches. METHODS: This study involved conducting focus group interviews and collecting qualitative data from 37 participants in multiple stakeholder groups (patients = 6, caregivers = 5, service providers = 7, government staff = 5 and researchers = 14) in the community mental health field. The data were qualitatively analysed using a data-driven approach that derived domains, themes and subthemes related to perspectives on PPI and to specific challenges and approaches for implementing PPI. RESULTS: The qualitative analysis identified four domains. The 'Positive views and expectations regarding PPI' domain consisted of themes related to supportive views of PPI in a mental health service research setting and improvements in the quality of research and service. The 'General concerns about PPI' domain included themes concerning the need for non-PPI research and tokenism, excessive expectations concerning social changes and use of evidence from PPI research, and heavy burdens resulting from PPI. The 'Specific issues regarding the implementation of PPI' domain consisted of four themes, including academic systems, selection methods (e.g., representativeness and conflict of interest issues), relationship building, and ambiguous PPI criteria. In particular, all stakeholder groups expressed concerns about relational equality during PPI implementation in Japan. The 'Approaches to PPI implementation' domain included themes such as facilitating mutual understanding, creating a tolerant atmosphere, establishing PPI support systems (e.g., training, ethics and human resource matching) and empowering patient organizations. CONCLUSION: The study replicated most of the barriers and approaches to PPI reported by qualitative research in Western counties. However, utilization of evidence produced by PPI research and partnership in the PPI process may be particularly serious issues in Japan. Future PPI studies should carefully address solutions that fit each culture. PATIENT OR PUBLIC CONTRIBUTION: A patient-researcher was involved in all stages of this project, from development of the research topic and the protocol to manuscript preparation

Knowledge management · Mental health · Political science · Psychiatry · Public health · Public relations · Qualitative analysis · Qualitative research · Sociology · Clinical practice guidelines implementation · Computer Science · Medicine · Mental Health and Patient Involvement · Nursing · Patient-Provider Communication in Healthcare · Psychology