Finding harmony within dissonance

Engaging patients, family/caregivers and service providers in research to fundamentally restructure relationships through integrative dynamics

Dados Bibliográficos

ID19507979
AutoresGillian Mulvale (0000-0003-0546-6910, DeGroote School of Business McMaster University Hamilton ON Canada, autor correspondente), Jenn Green (0000-0001-7958-1714, DeGroote School of Business McMaster University Hamilton ON Canada), Ashleigh Miatello (0000-0002-1254-8837, Health Policy PhD Program McMaster University Hamilton ON Canada), Ann E Cassidy (Hamilton ON Canada), Terry Martens (Hamilton ON Canada)
Ano2021
Volume24
FascículoS1
Páginas147-160
Data de publicação2021-05-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoHealth Expectations (JOURNAL)
Identificadores do periódicoISSN: 1369-6513 • E-ISSN: 1369-7625
EditoraWiley (PUBLISHER • GB)
DOI10.1111/hex.13063
PMID32529748
OpenAlexW3035185242
IdiomaEN
Citações recebidas10
Referências citadas21

BACKGROUND: Deeply divided ideological positions challenge collaboration when engaging youth with mental disorders, caregivers and providers in mental health research. The integrative dynamics (ID) approach can restructure relationships and overcome 'us vs them' thinking. OBJECTIVE: To assess the extent to which an experience-based co-design (EBCD) approach to patient and family engagement in mental health research aligned with ID processes. METHODS: A retrospective case study of EBCD data in which transitional-aged youth (n = 12), caregivers (n = 8) and providers (n = 10) co-designed prototypes to improve transitions from child to adult services. Transcripts from focus groups and a co-design event, co-designed prototypes, the resulting model, evaluation interviews and author reflections were coded deductively based on core ID concepts, while allowing for emergent themes. Analysis was based on pattern matching. Triangulation across data sources, research team, and youth and caregiver reflections enhanced rigour. FINDINGS: The EBCD focus group discussions of touchpoints in experiences aligned with ID processes of acknowledging the past, by revealing the perceived identity mythos of each group, and allowing expression of and working through emotional pain. These ID processes were briefly revisited in the co-design event, where the focus was on the remaining ID processes: building cross-cutting connections and reconfiguring relationships. The staged EBCD approach may facilitate ID, by working within one's own perspective prior to all perspectives working together in co-design. CONCLUSION: Researchers can augment patient engagement approaches by applying ID principles with staged integration of groups to improve relations in mental health systems, and EBCD shows promise to operationalize this

Business · Cognitive dissonance · Pedagogy · Restructuring · Service provider · Counseling, Therapy, and Family Dynamics · Health Policy Implementation Science · Mental Health and Patient Involvement · Psychology · Social Psychology · Marketing