All Good Without Anything Good. Beyond Survival

Understanding the Psychosocial Experiences of Individuals With Chronic Kidney Disease and Their Caregivers in Sri Lanka

Bibliographic Data

ID19508039
AuthorsDarshika Thejani Bulathwatta (0009-0006-3165-4607, Department of Psychology and Counseling Faculty of Health Sciences, The Open University of Sri Lanka Colombo Sri Lanka, corresponding author), Agata Rudnik (0000-0001-7174-809X, Institute of Psychology Faculty of Social Sciences, University of Gdańsk Gdansk Poland), Mariola Bidzan (0000-0003-0224-1994, University of Gdańsk), Karolina Lutkiewicz (0000-0001-9697-2303, Institute of Psychology Faculty of Social Sciences, University of Gdańsk Gdansk Poland)
Year2024
Volume27
Issue4
Pagese14157-e14157
Publication date2024-08-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.14157
PMID39087524
OpenAlexW4401203705
LanguageEN
References cited38

AIM: This study aims to explore the experiences of individuals with chronic kidney disease (CKD) undergoing haemodialysis and their caregivers, focusing on the disease's impact and the treatment process. BACKGROUND: In Sri Lanka, CKD is a growing health concern, particularly affecting farming communities and contributing to the strain on the biomedical healthcare system. Despite increasing awareness of CKD's physical implications, its psychosocial impact remains underexplored. This study seeks to fill this gap, aiming to inform culturally sensitive interventions and improve the healthcare system's responsiveness to the unique needs of Sinhala Buddhist individuals with CKD and their caregivers. DESIGN: An exploratory qualitative study. METHOD: Semistructured interviews were conducted with 10 individuals undergoing haemodialysis and 5 caregivers at a dialysis unit. The interviews were audio-recorded, transcribed and analysed using conventional qualitative content analysis. FINDINGS: The analysis revealed three interrelated main themes: (1) impact on standard of living (quality of life), (2) coping strategies and (3) medical experience, with a notable influence of traditional beliefs and practices. CONCLUSION: The findings highlight the need for a holistic approach to CKD management that integrates physical, emotional, psychological and social aspects, considering the significant role of traditional influences. Further research is essential to develop effective interventions that can enhance the quality of life for CKD. PATIENT OR PUBLIC CONTRIBUTION: The lived experiences of Sinhala Buddhist individuals with CKD and their caregivers served as a cornerstone, providing profound insights into the impact of the condition on their lives. Throughout the study, these participants played an instrumental role in refining the research's cultural sensitivity and relevance. Their engagement extended beyond the data collection phase to encompass feedback sessions, where they actively shared their perspectives. This ongoing collaboration ensured the study's depth and applicability to real-world experiences. By actively involving those directly affected by CKD, this collaborative approach safeguards that the study remains rooted in their voices and addresses their unique needs. REPORTING METHOD: This study adhered to relevant EQUATOR guidelines (the COREQ checklist). TRIAL REGISTRATION: This study is not a clinical trial, and thus, registration is not applicable

Health care · Kidney disease · Psychiatry · Psychological intervention · Psychosocial · Qualitative research · Social support · Chronic Kidney Disease and Diabetes · Clinical Psychology · Diabetes Management and Education · Dialysis and Renal Disease Management · Medicine · Nursing · Psychology · Social Psychology · Gerontology

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