Working With People With Experience of Psychosis to Co‐Design an Educational and Anti‐Stigma Psychosis Intervention for Schools
Bibliographic Data
| ID | 19508176 |
|---|---|
| Authors | William John Parrott (0009-0009-2510-6569, School of Medical and Health Sciences Bangor University Bangor UK, corresponding author), Mike Jackson (0000-0003-4601-6633, North Wales Clinical Psychology programme Bangor University Bangor UK), Anne Krayer (0000-0003-1503-1734, School of Medical and Health Sciences Bangor University Bangor UK) |
| Year | 2025 |
| Volume | 28 |
| Issue | 5 |
| Pages | e70333-e70333 |
| Publication date | 2025-10-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health Expectations (JOURNAL) |
| Journal identifiers | ISSN: 1369-6513 • E-ISSN: 1369-7625 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/hex.70333 |
| PMID | 41105001 |
| OpenAlex | W4415282269 |
| Language | EN |
| References cited | 62 |
INTRODUCTION: Psychosis is a particularly stigmatised condition in adolescent populations, with prevalent stigmatising beliefs surrounding it including negative stereotypes around dangerousness, unpredictability and chronicity. Additionally, the first episodes of psychosis increase significantly during late adolescence, and there is a lack of understanding and recognition of psychosis in young people. Given these factors, psychosis appears to be an important topic for mental health literacy and anti-stigma programmes. However, there is a lack of consensus surrounding the best way to construct psychosis anti-stigma interventions for young people. Voices of people with experience of psychosis seem crucial in this regard, but their experiences of stigma and discrimination are rarely heard. By including their perspectives along with those of other stakeholders, we aim to ensure that we gain a better, more balanced perspective on how to talk about psychosis with young people. METHODS: This study reports on the co-design process of a psychosis anti-stigma educational intervention for young people using the short-form Guidance for Reporting Involvement of Patients and the Public (GRIPP-2) checklist as a guiding framework. Six workshops were held over 3 months, with experts with experience of psychosis working with clinicians and academics. These workshops explored the differing views of these groups on how we understand, talk about and perceive psychosis. RESULTS: This process resulted in an educational module named 'Reality and Psychosis', which we believe will prove effective in not only educating but also diminishing stigma surrounding psychosis among young people. CONCLUSION: By incorporating various perspectives, we hope to provide a well-rounded and balanced approach to addressing the complexities of discussing psychosis with young people. The GRIPP-2 checklist also proved to be a useful framework for assisting the reporting process. PATIENT OR PUBLIC CONTRIBUTION: Individuals with lived experience of psychosis participated throughout the co-design process. Specifically, they contributed to the six workshops by sharing their personal experiences of stigma, discrimination and recovery, which informed the development of the educational module. This helped ensure the voices of those directly affected by psychosis were authentically represented
Early psychosis · Lived experience · MEDLINE · Psychosis · Mental Health and Patient Involvement · Mental Health Treatment and Access · Schizophrenia research and treatment
Evolving Public Views On The Likelihood Of Violence From People With Mental Illness
Research co-design in health
Using a multi-stakeholder experience-based design process to co-develop the Creating Active Schools Framework
Discrimination in health care against people with mental illness
Evolution of public attitudes about mental illness
GRIPP2 reporting checklists
The paradox of self-stigma and mental illness.
Prejudice and schizophrenia
The use of co-production, co-design and co-creation to mobilise knowledge in the management of health conditions
From tokenism to empowerment
Biogenetic explanations and public acceptance of mental illness
Expectations versus reality
Mapping the impact of patient and public involvement on health and social care research
Mapping definitions of co‐production and co‐design in health and social care
Developing a ‘critical’ approach to patient and public involvement in patient safety in the NHS
Reflections, impact and recommendations of a co‐produced qualitative study with young people who have experience of mental health difficulties
Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis
Fighting psychiatric stigma in the classroom
Biogenetic explanations and stigma
Drawing straight lines along blurred boundaries
Realising the Potential of Co-production
The Promise of Co‐Design for Public Policy
Public conceptions of mental illness
Combining education and video-based contact to reduce stigma of mental illness
Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals
| Highly cited | No |
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