Involvement of adolescent representatives and coresearchers in mental health research
Experiences from a research project
Dados Bibliográficos
INTRODUCTION: In spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adolescents in mental health research, to describe the collaborative relationship between researchers and coresearchers, including the values that underpin their collaboration. METHODS: An autoethnographic approach was used, combined with group reflections. The process was jointly developed, carried out and analysed by adolescent coresearchers and the project's lead researcher over a period of 2 years. The article is jointly authored by the researcher and the ten coresearchers. RESULTS: Six themes were developed to describe our collaborative relationship, resulting in the involvement of adolescents in decisions about research priorities; in planning and carrying out the research; through to analysis, dissemination and communication of results. The themes include: (1) Commitment motivated by altruism, personal interests and a common purpose; (2) Inclusiveness and support to reduce social uncertainty and strengthen collaboration; (3) Reduced power differentials while ensuring clarity of roles and tasks; (4) Diversity in representation to expand the perspectives of 'the adolescent voice'; (5) Self-determination-supporting adolescents' involvement in decision-making processes; and (6) Flexible and systematic project management. The themes describe the collaboration, the underlying values and motives, the challenges faced and how they were overcome. CONCLUSION: This self-reflective process describing a 4-year collaborative research project resulted in the development of recommendations for involving adolescents in mental health research. The recommendations could potentially contribute to a change of 'research culture' to expand the currently limited involvement of adolescents in research. PATIENT OR PUBLIC CONTRIBUTION: Adolescents have contributed as coresearchers through all phases of the research project and as coauthors of this article, including planning, participation in the self- and group-reflective processes, analysis and authoring the article
CLARITY · Medical education · Mental health · Political science · Psychotherapist · Public relations · Sociology · Applied Psychology · Children's Rights and Participation · Computer Science · Focus Groups and Qualitative Methods · Medicine · Participatory Visual Research Methods · Psychology
“A sense of community.” A qualitative descriptive study on how to build relationships and rapport with people with lived/living experience and caregivers engaged in mental health and substance use health research
Meta‐Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research
Involvement of adolescent representatives and coresearchers in mental health research
Characteristics of the ideal healthcare services to meet adolescents' mental health needs
Better Design, Better Engagement, Better Data
Youth engagement in mental health research
Understanding and Defining Young People's Involvement and Under‐Representation in Mental Health Research
Values associated with public involvement in health and social care research
Involvement of adolescent representatives and coresearchers in mental health research
Adolescent and young adult patients as co‐researchers
A multidimensional conceptual framework for analysing public involvement in health services research
Health researchers’ attitudes towards public involvement in health research
Critical perspectives on user involvement
| Obras citantes distintas | 7 |
|---|---|
| Citações por ano | 1,75 |
| Intervalo de citações | 2022 - 2026 (5) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 7 |