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Consumer‐driven health care

Building partnerships in research

Bibliographic Data

ID19508976
AuthorsBeverley Shea (0000-0002-7686-2585, University of Ottawa, corresponding author), Nancy Santesso (0000-0003-0550-4585, University of Ottawa), Ann Qualman (Cochrane), Turid Heiberg (Diakonhjemmet Hospital), Amye Leong (0000-0002-9948-7407), Maria Judd (University of Ottawa), Vivian Robinson (University of Ottawa), George A Wells (0000-0002-2289-9139, University of Ottawa), George Wells (0000-0002-9100-1628), Peter Tugwell (0000-0001-5062-0556, University of Ottawa)
Year2005
Volume8
Issue4
Pages352-359
Publication date2005-12-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/j.1369-7625.2005.00347.x
PMID16266423
OpenAlexW1995433954
LanguageEN
Citations received18
References cited2

Over the past four decades, there has been a widespread movement to increase the involvement of patients and the public in health care. Strategies to effectively foster consumer participation are occurring within all research activities from research priority setting to utilization. One of the ten principles of the Cochrane Collaboration is to ‘enable wide participation’, and this includes consumers. The Cochrane Musculoskeletal Group (CMSG) is a review group of 50 within the Collaboration that has been working to increase consumer participation since its inception in 1993. Based in Canada, the CMSG has embraced the concept of knowledge translation as advocated by the Canadian Institutes of Health Research. The emphasis in knowledge translation is on interactions or partnerships between researchers and users to facilitate the use of relevant research in decision making. While the CMSG recognizes the importance of reaching all users, much of its work has focused on developing relationships with people with musculoskeletal diseases to enhance consumer participation in research. The CMSG has built a network of consumer members who guide research priorities, peer review systematic reviews and also promote and facilitate consumer‐appropriate knowledge dissemination. Consumers were recruited through links with other arthritis organizations and the recruitment continues. Specific roles were established for the consumer team and responsibilities of the CMSG staff developed. The continuing development of a diversified team of consumer participants enables the CMSG to produce and promote access to high quality relevant systematic reviews and summaries of those reviews to the consumer

Business · Health care · Knowledge management · Knowledge translation · Medical education · Political science · Public relations · Clinical practice guidelines implementation · Engineering · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Psychology · Marketing

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    Open Access•Jo Brett, Sophie Staniszewska et al.•The Patient - Patient-Centered…•2014

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    Open Access•Elizabeth A Fradgley, Cedar Paul et al.•International Journal of…•2018

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    Open Access•Karen Witten, Kay Hammond•Kōtuitui New Zealand Journal of…•2010

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    Francesco Sdrubolini, Elena Faccio et al.•Addiction Research & Theory•2025

  • Consumer involvement in systematic reviews of comparative effectiveness research

    Open Access•Julia Kreis, Milo A Puhan et al.•Health Expectations•2013

  • Patient-expert partnerships in research

    Open Access•Janneke Elberse, Janneke E Elberse et al.•Health Expectations•2011

  • Clarifying the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research

    Open Access•Éidín Ní Shé, Sarah Morton et al.•Health Expectations•2019

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    Open Access•Hazel Thornton, Michael Baum et al.•Health Expectations•2006

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    Open Access•Jo Brett, Sophie Staniszewska et al.•Health Expectations•2014

  • Improving the quality of prison research

    Open Access•Yvonne Awenat, Currie Moore et al.•Health Expectations•2018

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    Open Access•Maya De Wit, Maarten P T de Wit et al.•Health Expectations•2015

  • Do different stakeholder groups share mental health research priorities? A four‐arm Delphi study

    Open Access•C Owens, Ann Ley et al.•Health Expectations•2008

  • The Cochrane Library review titles that are important to users of health care, a Cochrane Consumer Network project

    Open Access•Janet L Wale, Janet Wale et al.•Health Expectations•2013

  • Collaboration and co‐ownership in research

    Open Access•Christi Nierse, Christi J Nierse et al.•Health Expectations•2012

  • Patient and service user engagement in research

    Open Access•Nathan D Shippee, Juan Pablo Domecq Garces et al.•Health Expectations•2015

  • Patient involvement in health research

    Open Access•P Serrano-Aguilar, M M Trujillo-Martín et al.•Social Science & Medicine•2009

Citations per year0.9
Citation span2006 - 2025 (20)
Highly citedNo

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Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae