Ethical challenges of conducting and reviewing human genomics research in Malaysia
An exploratory study
Bibliographic Data
| ID | 19516818 |
|---|---|
| Authors | Teong Win Zee (0000-0001-8906-4526), Mohammad Firdaus Bin Abdul Aziz (0000-0003-2426-5284, corresponding author), Chia‐Wei Phan (0000-0003-1373-1374) |
| Year | 2024 |
| Volume | 24 |
| Issue | 4 |
| Pages | 331-341 |
| Publication date | 2024-12-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Developing World Bioethics (JOURNAL) |
| Journal identifiers | ISSN: 1471-8731 • E-ISSN: 1471-8847 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/dewb.12435 |
| PMID | 37997006 |
| OpenAlex | W4388975868 |
| Language | EN |
| References cited | 3 |
Even though there is a significant amount of scholarly work examining the ethical issues surrounding human genomics research, little is known about its footing in Malaysia. This study aims to explore the experience of local researchers and research ethics committee (REC) members in developing it in Malaysia. In‐depth interviews were conducted from April to May 2021, and the data were thematically analysed. In advancing this technology, both genomics researchers and REC members have concerns over how this research is being developed in the country especially the absence of a clear ethical and regulatory framework at the national level as a guidance. However, this study argues that it is not a salient issue as there are international guidelines in existence and both researchers and RECs will benefit from a training on the guidelines to ensure genomics research can be developed in an ethical manner
Bioethics · Biology · Engineering ethics · Ethical issues · Exploratory research · Genomics · Human research · Political science · Public relations · Research ethics · Salient · Social science · Sociology · Biomedical Ethics and Regulation · Cancer Genomics and Diagnostics · Engineering · Ethics in Clinical Research · Law
| Highly cited | No |
|---|