Patient and provider experiences with PEN-Plus in rural Mozambique
Cohort characteristics at baseline
Bibliographic Data
BACKGROUND: Severe chronic noncommunicable diseases (SC-NCDs) globally present a challenge for health systems, particularly in rural settings of low- and lower-middle-income countries (LLMICs). The Package of Essential NCD Interventions-Plus (PEN-Plus) is a strategy currently used in 14 LLMICs to effectively manage people living with SC-NCDs (PLWSC-NCDs), including in Nhamatanda, Sofala Province, Mozambique. OBJECTIVES: We are conducting a cohort study of PLWSC-NCDs, enrolled at Nhamatanda PEN-Plus clinic, to understand their experiences in care and clinic evolution. Here, we describe our methods and the cohort at baseline. METHODS: An 18th month cohort study was initiated shortly after the launch of the PEN-Plus clinic. At baseline, PLWSC-NCD and healthcare providers were enrolled in the study. Qualitative interviews and quantitative measurements including diabetes distress for patients and provider shadowing and task mapping were conducted at baseline and will be carried out semiannually for 18 months. RESULTS: Twenty-three PLWSC-NCDs and five healthcare providers were enrolled. Most provider training occurred formally pre-service or in service or less formally on job, and providers self-reported varying levels of task proficiencies. Other than personal achievement, we found generally low provider burnout at baseline. We gained insight into patients journey to diagnosis: most patients described a lengthy journey, resulting in unique clinical presentations and associated costs reflected by patients' borrowing money or selling assets. CONCLUSION: There are health systems challenges associated with diagnosis and treatment of SC-NCDs in LLMICs. PEN-Plus is a strategy designed to provide mid-level healthcare workers with the necessary training and tools. This 18-month study will examine the evolution of care at the Nhamatanda clinic
Cohort · Cohort study · Disease · Health care · Healthcare system · MEDLINE · Global Health and Surgery · Global Health Workforce Issues · Global Maternal and Child Health
Assessment of Diabetes-Related Distress
The Lancet NCDI Poverty Commission
NCD Countdown 2030
Research electronic data capture (Redcap)—A metadata-driven methodology and workflow process for providing translational research informatics support
The Redcap consortium
Facility readiness for decentralized Package of Essential Noncommunicable Disease Interventions-Plus (PEN-Plus) care in nine lower-income countries
The measurement of experienced burnout
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