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Healthcare professionals' challenges and solutions in providing palliative care to patients with severe chronic obstructive pulmonary disease

Bibliographic Data

ID19550677
AuthorsSylvia McCarthy (Hospis Malaysia, Kuala Lumpur, Malaysia), Jayakayatri Jeevajothi Nathan (0000-0001-7811-5738, University of Malaya), Ee Ming Khoo (0000-0003-3191-1264, University of Malaya), Zee Nee Lim (Hospis Malaysia, Kuala Lumpur, Malaysia), Nik Sherina Hanafi (0000-0001-9140-0955, University of Malaya), Norita Hussein (0000-0001-9610-467X, University of Malaya), RESPIRE collaboration
Year2026
Volume16
Pages03004-03004
Publication date2026-02-20
Open AccessYes
TypeARTICLE
VenueJournal of Global Health (JOURNAL)
Journal identifiersISSN: 2047-2978 • E-ISSN: 2047-2986
PublisherInternational Society of Global Health (PUBLISHER • GB)
DOI10.7189/jogh.16.03004
PMID41718005
OpenAlexW7130648392
LanguageEN
References cited14

Palliative care significantly improves the quality of life for individuals with advanced chronic diseases. However, access in Malaysia remains limited, particularly for patients with non-malignant conditions such as chronic obstructive pulmonary disease (COPD). Here, we discuss the barriers and solutions identified through a nine hour in-person stakeholder workshop to co-develop practical initiatives for integrating palliative care into the management of severe COPD. Key challenges in the assessment of severe COPD included limited training in holistic care, resource constraints, and fragmented care pathways. In management, issues included low awareness and availability of pulmonary rehabilitation, uncertainty in initiating palliative care and difficulty accessing opioids, limited provider training, and patient-level barriers such as stigma and low health literacy. Proposed solutions included cascade training, decentralised care models, strengthened communication skills, and integrated care pathways. This workshop highlighted the need for multidisciplinary training, system-level integration, and culturally responsive care models to improve palliative access for patients with severe COPD. It also underscored the importance of policy engagement to address structural barriers such as opioid regulation and fragmented care. This approach offers a promising model for capacity building in other resource-limited settings

COPD · Health care · MEDLINE · Multidisciplinary approach · Palliative care · Pulmonary disease · Quality of life (healthcare) · Stakeholder · Chronic Obstructive Pulmonary Disease (COPD) Research · Palliative Care and End-of-Life Issues · Respiratory Support and Mechanisms

  • Global burden of 369 diseases and injuries in 204 countries and territories, 1990–2019

    Open Access•Theo Vos, Stephen S Lim et al.•The Lancet•2020

  • Exploring the disease experience and supportive care for people with very severe chronic obstructive pulmonary disease in Malaysia

    Open Access•Zee Nee Lim, Su May Liew et al.•Journal of Global Health•2025

Highly citedNo

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