Health Disparities in Advance Care Planning
Development of a Spanish-Language Lead Guide (Life-Planning in Early Alzheimer's and Other Dementias)
Bibliographic Data
| ID | 19578728 |
|---|---|
| Authors | Kara Dassel (0000-0001-8236-9693, University of Utah, corresponding author), Rebecca L Utz (0000-0001-7734-7676, University of Utah), Ana Sanchez-Birkhead (0000-0003-4466-2367, University of Utah), Sara Carbajal-Salisbury (Community Health Alliance), Jeannette Villalta (Community Health Alliance), Moroni Fernandez Cajavilca (0000-0002-1141-2671, University of Utah), Moroni Cajavilca, Lauren Solkowski (0009-0009-1542-6171, University of Utah), Nancy Aruscavage (0009-0007-2385-9538, University of Utah), Kathie Supiano (University of Utah), Eli Iacob (0000-0003-1617-0314, University of Utah) |
| Year | 2023 |
| Volume | 7 |
| Issue | 1 |
| Pages | 430-438 |
| Publication date | 2023-08-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health Equity (JOURNAL) |
| Journal identifiers | ISSN: 2473-1242 • E-ISSN: 2473-1242 |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1089/heq.2022.0143 |
| PMID | 37638115 |
| OpenAlex | W4386171912 |
| Language | EN |
| References cited | 38 |
Introduction: The LEAD (Life-Planning in Early Alzheimer's and Other Dementias) Guide is an advance care planning (ACP) tool for use within the context of dementia. To meet the needs of diverse communities, we sought to create a culturally sensitive and translated Latin American Spanish version of the guide. Methods: First, the guide was translated into Spanish. Second, we conducted forward and backward translations. Third, focus groups with Spanish-speaking Latino adults were held (healthy adults and current or previous dementia caregivers). Results: Descriptive analysis revealed three domains regarding the Latin American Spanish version of the LEAD Guide (LA LEAD Guide): (1) Family Dynamics (e.g., preventing family conflict), (2) Cultural Expectations (e.g., familial caregiving responsibility), and (3) Health Literacy (e.g., lack of knowledge about ACP). Discussion: This process created the Latin American LEAD Guide as a culturally and linguistically appropriate and acceptable ACP tool for older Latino adults. Health Equity Implications: The availability of culturally sensitive and Spanish ACP resources could facilitate greater health care access and research participation among Latino Americans by diminishing the linguistic and health literacy barriers for those not comfortably proficient in English
Advance care planning · Dementia · Disease · Geography · Health care · Health equity · Health literacy · Latin Americans · Literacy · Pedagogy · Political science · Public health · Dementia and Cognitive Impairment Research · Geriatric Care and Nursing Homes · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology · Gerontology
Ecological validity and cultural sensitivity for outcome research
Racial and ethnic estimates of Alzheimer's disease and related dementias in the United States (2015–2060) in adults aged ≥65 years
The effects of advance care planning on end-of-life care
Defining Advance Care Planning for Adults
Cultural adaptation framework of social interventions in mental health
Translation and cross-cultural adaptation of eight pediatric PROMIS® item banks into Spanish and German
Racial Differences in End-Of-Life Planning
End-of-Life Planning in a Family Context
Insufficient Advance Care Planning? Correlates of Planning Without Personal Conversations
End‐of‐Life Treatment Preferences Among Older Adults
Culturally centered psychosocial interventions
Familismo in Mexican and Dominican Families From Low-Income,Urban Communities
| Citation velocity | historical |
|---|---|
| Highly cited | No |