Methodological and ethical aspects of evaluation research in bereavement

Bereavement services, in common with all health, social care and counselling programmes and interventions, are increasingly required to demonstrate their clinical and cost effectiveness. This paper describes the main ethical and practical issues raised for one service (a hospice-based bereavement support service), and how they were overcome. It offers advice to other organisations and researchers on important aspects of the process, including the need to ensure good relationships with staff and professional supervision and support for the researcher. It also challenges the common view that participation in research may be harmful for bereaved people. Participants in this survey welcomed the chance to talk about their feelings, and to make a contribution to furthering understanding of the bereavement experience. Keywords: Evaluationmethodologymeasuresoutcomeshospice

Business · Engineering ethics · Ethical issues · Feeling · Psychiatry · Psychological intervention · Grief, Bereavement, and Mental Health · Medicine · Migration, Health and Trauma · Nursing · Palliative Care and End-of-Life Issues · Psychology · Social Psychology

• The Lifekeeper Memory Quilt

  Kath Peters, Alan Staines et al.•Death Studies•2015

  Incluir item

• A Research Literature Review to Determine How Bereavement Programs Are Evaluated

  Open Access•Donna M Wilson, Begoña Errasti‐Ibarrondo et al.•OMEGA - Journal of Death and Dying•2019

  Incluir item

• An internet-based photography therapy intervention into the grief of persons who have lost a loved one

  Open Access•Niina Keskinen, Saija Helmi et al.•Mortality•2024

  Incluir item

• Treatment of complicated grief

  Paul A Boelen, Jos De Keijser et al.•Journal of Consulting and…•2007

  Incluir item

• Defining empirically supported therapies.

  Dianne L Chambless, Steven D Hollon•Journal of Consulting and…•1998

  Incluir item

• The efficacy of bereavement interventions

  Henk Schut, Margaret S Stroebe et al.•Handbook of Bereavement Research•2001

  Incluir item

• You want to measure coping but your protocol’ too long

  Charles S Carver•International Journal of…•1997

  Incluir item

• A 12-Item Short-Form Health Survey

  John E Ware, Mark Kosinski et al.•Medical Care•1996

  Incluir item

• Practitioners and researchers working together in an intervention efficacy study

  Cate Newsom, Stewart W Wilson et al.•Bereavement Care•2011

  Incluir item

• A literature review on bereavement and bereavement care

  Peter Wimpenny, Rachel Unwin et al.•Bereavement Care•2007

  Incluir item

• Bereavement support in a hospice setting

  Amanda Roberts, Sinead McGilloway•Bereavement Care•2010

  Incluir item

• Dilemmas in the use of volunteers to provide hospice bereavement support

  Payne•Mortality•2002

  Incluir item

• Bracketing interviews

  Liz Rolls, Marilyn Relf•Mortality•2006

  Incluir item

• Bereavement research using control groups

  David E Balk•Death Studies•1995

  Incluir item

• The experience of participating in bereavement research

  Alicia Skinner Cook, Geri M Bosley et al.•Death Studies•1995

  Incluir item

• Guidelines for conducting ethical bereavement research

  J Parkes, Colin Murray Parkes•Death Studies•1995

  Incluir item

• Development and Validation of the Hogan Grief Reaction Checklist

  Daryl B Greenfield Nancy S Hogan, Daryl B Greenfield Lee Nancy S Hogan•Death Studies•2001

  Incluir item

• Development and Validation of the Hogan Grief Reaction Checklist

  Nancy S Hogan, Daryl B Greenfield et al.•Death Studies•2001

  Incluir item

• Report on Bereavement and Grief Research

  Janice Genevro, Tracy Marshall et al.•Death Studies•2004

  Incluir item

• Ethics of qualitative interviewing with grieving families

  P C Rosenblatt•Death Studies•1995

  Incluir item

• Does Grief Counseling Work

  John R Jordan, Robert A Neimeyer•Death Studies•2003

  Incluir item

• The Multidimensional Scale of Perceived Social Support

  Gregory D Zimet, Nancy Wray Dahlem et al.•Journal of Personality Assessment•1988

  Incluir item

• Bereaved parents' experience of research participation

  Open Access•Kari Dyregrov•Social Science & Medicine•2004

  Incluir item