Stillbirth, still life
A qualitative patient-led study on parents’ unsilenced stories of stillbirth
Bibliographic Data
| ID | 20159516 |
|---|---|
| Authors | Chelsia Gillis (0000-0002-0615-5922, University of Calgary), Venesa Wheatley (PaCER Innovates, University of Calgary, Calgary, Alberta, Canada), A D Jones (0000-0002-9265-3935, University of Calgary), Ashley Jones (0000-0003-2091-8102, PaCER Innovates, University of Calgary, Calgary, Alberta, Canada), Brenda Roland (PaCER Innovates, University of Calgary, Calgary, Alberta, Canada), Marlyn Gill (PaCER Innovates, University of Calgary, Calgary, Alberta, Canada), Nancy Marlett (0000-0001-6417-1894, University of Calgary), Svetlana Shklarov (University of Calgary) |
| Year | 2020 |
| Volume | 39 |
| Issue | 3 |
| Pages | 124-132 |
| Publication date | 2020-09-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Bereavement Care (JOURNAL) |
| Journal identifiers | ISSN: 0268-2621 • E-ISSN: 1944-8279 |
| Publisher | Cruse Bereavement Care (PUBLISHER • GB) |
| DOI | 10.1080/02682621.2020.1828724 |
| OpenAlex | W3105407515 |
| Language | EN |
| Citations received | 2 |
| References cited | 29 |
Our objective was to explore parents’ experiences of stillbirth using a patient-led qualitative approach, in the Canadian context. Parents who had experienced stillbirth in the previous five years were recruited through posters and snowball sampling. We conducted a co-design focus group to set the direction of our research, narrative interviews, and a reflect focus group to engage parents in finalizing the analysis and findings. Data was analysed iteratively using a participatory approach with grounded theory principles. Our findings highlight that stillbirth is a story of death, but it is also a story of life. Parents (n=11) require the space to experience both the birth and death elements of the story; yet, one or both elements are often silenced. Stillbirth, still life was the core concept that emerged from parents’ stories of their stillborn babies. Parents’ narratives are driven by the need to honour their babies’ lives. They are learning to be unsilenced
Developmental psychology · Focus group · Grounded theory · Honour · Narrative · Narrative inquiry · Qualitative research · Snowball sampling · Social science · Sociology · Grief, Bereavement, and Mental Health · History · Medicine · Palliative Care and End-of-Life Issues · Psychology · Qualitative Research Methods and Ethics
From grief, guilt pain and stigma to hope and pride – a systematic review and meta-analysis of mixed-method research of the psychosocial impact of stillbirth
Disenfranchised grief
Finding the positive in loss
“Part of the Team”
The Case for Integrating Grounded Theory and Participatory Action Research
Building new roles and relationships in research
The Role of Continuing Bonds in Coping With Grief
Code Saturation Versus Meaning Saturation
Now I see it, now I don't
| Unique citing works | 2 |
|---|---|
| Citations per year | 0,4 |
| Citation span | 2021 - 2023 (3) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |