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‘It was a blanket of love’

How American and Italian parents represent their experience of perinatal hospice through the use of metaphors

Bibliographic Data

ID20159872
AuthorsMargherita Dahò (0000-0003-4794-1433, University of Messina, corresponding author)
Year2020
Volume39
Issue3
Pages112-118
Publication date2020-09-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueBereavement Care (JOURNAL)
Journal identifiersISSN: 0268-2621 • E-ISSN: 1944-8279
PublisherCruse Bereavement Care (PUBLISHER • GB)
DOI10.1080/02682621.2020.1828720
OpenAlexW3104373959
LanguageEN
References cited33

The loss of a child is one of the most profoundly stressful events an adult can experience, but perinatal hospice may be an important resource for the family’s wellbeing. The aim of this study was to understand how a group of American and Italian parents of infants affected by life-limiting or terminal conditions and treated with personalised comfort measures represents, with a metaphorical statement, the experience of perinatal hospice care. Thirty five questionnaires were collected and included 13 parents from Italy and 22 from the US. Parents represent their experience as positive and rich with lovely family moments and, although it is also a hard path, they consider it as an important gift. Other metaphors elected were related to spirituality and transcendence, underlying the need of parents to express and share their spiritual values and beliefs. Finally, parents also perceived an overall support from care providers and felt as if they were part of the same family

Alternative medicine · Developmental psychology · Hospice care · Palliative care · Spirituality · Ethics and Legal Issues in Pediatric Healthcare · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology

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Highly citedNo

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