A literature review on bereavement and bereavement care

This paper reports on a systematic literature review of bereavement and bereavement care commissioned in Scotland to assist the development of policy and practice there. The review identified and appraised papers from a range of health and social care settings in which bereavement care b a feature, such as acute, hospice- and hospital-based care including neonatal and obstetric, community and primary care, mental health and learning disability services, and care of older people, families and children. Specific types of death were also reviewed, eg traumatic and from (tiseases such as HIV/AIDS. Key messages for each setting and type were identified and overall themes were drawn out which cut across at settings and types. These, it is proposed, represent important features of bereavement and bereavement care which, if acknowledged and addressed, could enhance services

Acute care · Grief · Health care · Learning disability · Mental health · Psychiatry · Grief, Bereavement, and Mental Health · Homelessness and Social Issues · Medicine · Migration, Health and Trauma · Nursing · Psychology

• Effectiveness of “Primary Bereavement Care” for Widows

  Jesús Alberto García García, Jesús A García et al.•Death Studies•2012

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• A Whole-Hospital Approach? Some Staff Views of a Hospital Bereavement Care Service

  Trish Walsh, Gaye Breslin et al.•Death Studies•2013

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• The Role of Grief, Anxiety, and Depressive Symptoms in the Use of Bereavement Services

  Elizabeth Bergman, Elizabeth J Bergman et al.•Death Studies•2010

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• Bereavement Support in an Acute Hospital

  Trish Walsh, Maeve Foreman et al.•Death Studies•2008

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• A literature review on bereavement and bereavement care

  Peter Wimpenny, Rachel Unwin et al.•Bereavement Care•2007

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• Orphaned learners’ experiences with regard to bereavement support

  Simon Taukeni, Simon George Taukeni•Bereavement Care•2012

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• The experience of bereavement following a physician assisted suicide (PAS)

  Jan Fish•Bereavement Care•2017

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• Perinatal Loss and Parental Grief

  Open Access•Ariella Lang, Andrea R Fleiszer et al.•OMEGA - Journal of Death and Dying•2011

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• Bereavement Assessment Practice in Hospice Settings

  Audrey Agnew, Roger Manktelow et al.•The British Journal of Social Work•2011

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• Bereavement and Bereavement Care in Health and Social Care

  Audrey Stephen, Audrey I Stephen et al.•Death Studies•2009

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• Methodological and ethical aspects of evaluation research in bereavement

  Amanda Roberts, Sinead McGilloway•Bereavement Care•2011

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• Loss of a Parent in Disney and Pixar Films

  Open Access•Corina Sgier, Mirriam Tyebally Fang et al.•OMEGA - Journal of Death and Dying•2024

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• An Evidence-Based Theory of Psychological Adjustment to Long-Term Physical Health Conditions

  Susan Carroll, Zoe Moon et al.•Psychosomatic Medicine•2022

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• Evidence-Informed Primary Bereavement Care

  Open Access•Ariella Lang, Andrea R Fleiszer et al.•International Journal of…•2015

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• Handbook of bereavement research

  Henk and Schut, Margaret S Stroebe et al.•Handbook of Bereavement Research•2001

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• Psychiatric Disorders Among Bereaved Persons

  Open Access•Lisa C Barry, Stanislav V Kasl et al.•The American Journal of Geriatric…•2002

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• Synthesising qualitative and quantitative evidence

  Open Access•Mary Dixon-Woods, Shona Agarwal et al.•Journal of Health Services…•2005

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• The Mourning Response of Parents to the Death of a Newborn Infant

  John H Kennell, Howard Slyter et al.•New England Journal of Medicine•1970

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• Gender Differences in Adjustment to Bereavement

  Open Access•Margaret S Stroebe, Wolfgang Stroebe et al.•Review of General Psychology•2001

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• The varieties of grief experience

  Open Access•George A Bonanno, Stacey Kaltman•Clinical Psychology Review•2001

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• The Family Bereavement Program

  Irwin N Sandler, Tim Ayers et al.•Journal of Consulting and…•2003

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• Treatment of Complicated Grief

  Katherine Shear, Ellen Frank et al.•JAMA•2005

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• Preventive Intervention With the Recently Bereaved

  Beverley Raphael•Archives of General Psychiatry•1977

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• Older people's views about home as a place of care at the end of life

  Open Access•Merryn Gott, Julie Seymour et al.•Palliative Medicine•2004

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• Suicidality and Bereavement

  Open Access•Amy E Latham, Holly G Prigerson•Suicide and Life-Threatening…•2004

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• Prospective Patterns of Resilience and Maladjustment During Widowhood.

  George A Bonanno, Camille B Wortman et al.•Psychology and Aging•2004

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• Trauma and bereavement

  Open Access•Stacey Kaltman, George A Bonanno•Journal of Anxiety Disorders•2003

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• Is Suicide Bereavement Different? A Reassessment of the Literature

  Open Access•John R Jordan•Suicide and Life-Threatening…•2001

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• Inventory of complicated grief

  Open Access•Holly G Prigerson, Paul K Maciejewski et al.•Psychiatry Research•1995

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• The efficacy of bereavement interventions

  Henk Schut, Margaret S Stroebe et al.•Handbook of Bereavement Research•2001

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• Symptomatology and Management of Acute Grief

  Erich Lindemann•American Journal of Psychiatry•1944

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• On spiritual pain in the dying

  L H Heyse-Moore, Louis Heyse-Moore•Mortality•1996

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• Initial steps to developing the World Health Organization's Quality of Life Instrument (WHOQOL) module for international assessment in HIV/Aids

  Suzanne M Skevington•AIDS Care•2003

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• Cognitive Adaptation and Women's Adjustment to Conjugal Bereavement

  Norm O’rourke, Norm O'Rourke•Journal of Women & Aging•2004

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• Culture and grief

  Margaret Stroebe, Margaret S Stroebe et al.•Bereavement Care•1998

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• A literature review on bereavement and bereavement care

  Peter Wimpenny, Rachel Unwin et al.•Bereavement Care•2007

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• Child bereavement in Humberside schools

  John Holland, John L Holland•Bereavement Care•1997

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• Counselling bereaved people-help or harm

  J Parkes, Colin Murray Parkes•Bereavement Care•2000

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• The changing identities of miscarriage and stillbirth

  Alice Lovell•Bereavement Care•2001

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• Working with widowed men

  Christine Crossland•Bereavement Care•1998

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• Bereavement Care in Hospitals

  Susan Silvey•Bereavement Care•1990

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• The nine-cell bereavement table

  Jenny Hunt•Bereavement Care•2002

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• Mind mapping

  Helen Kershaw•Bereavement Care•1998

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• After a terrorist attack

  J Parkes, Colin Murray Parkes•Bereavement Care•2001

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• Bereavement interventions for people with learning disabilities

  Dowling, Sandra Dowling et al.•Bereavement Care•2003

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• Responding to bereavement at work

  David Charles-Edwards•Bereavement Care•2001

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• The Norwegian Bereavement Care Project

  Frode Thuen, OddbjøoSrn Sandvik•Bereavement Care•1998

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• Returning to employment after bereavement

  Kevin Russell•Bereavement Care•1998

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• Family focused grief therapy

  David Kissane, David W Kissane•Bereavement Care•2003

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• Parents' support group in Dunblane

  Alexandra Frean•Bereavement Care•1998

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• Doing and Being Well (for the Most Part)

  Open Access•Johannes J Bauer, George A Bonanno•Journal of Personality•2001

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• The crucial importance of empirical evidence in the development of bereavement theory

  George A Bonanno•Psychological Bulletin•2001

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• Spoiled Memories

  Gordon Riches•Mortality•1998

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• A reasonable grief—discursive constructions of grief in a public conversation on raising the shipwrecked M/S Estonia

  Eva Reimers•Mortality•2003

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• Longitudinal changes in mental and physical health among elderly, recently widowed men

  Kate Mary Bennett, Kate Bennett•Mortality•1998

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• Communities of feeling

  Gordon Riches, PAM DAWSON•Mortality•1996

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• A new model of grief

  Tony Walter•Mortality•1996

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• Supporting the bereaved child

  Danai Papadatou, Olga Metallinou et al.•Mortality•2002

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• Dilemmas in the use of volunteers to provide hospice bereavement support

  Payne•Mortality•2002

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• The Complexity of Loss in Continuing Care Institutions for Older People

  Open Access•Cheryl Holman, Julienne Meyer et al.•Illness Crisis & Loss•2004

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• Psychotherapy of Traumatic Grief

  Selby Jacobs, Holly Prigerson Selby Jacobs•Death Studies•2000

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• Death Anxiety in Older Adults

  Robert A Neimeyer Barry V Fortner•Death Studies•1999

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• Experiences in Family Bereavement

  Paige N Fletcher•Family & Community Health•2002

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• Husband and Adult-Daughter Caregivers' Bereavement

  Open Access•Lori Lynn Bernard, Charles A Guarnaccia•OMEGA - Journal of Death and Dying•2002

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• Post-Loss Adjustment and Funeral Perceptions of Parentally Bereaved Adolescents and Adults

  Open Access•Heather L Servaty‐Seib, Bert Hayslip•OMEGA - Journal of Death and Dying•2003

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• Adolescent Parent Mourning Reactions Associated with Stillbirth or Neonatal Death

  Open Access•Kelly J Welch, M Betsy Bergen•OMEGA - Journal of Death and Dying•2000

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• Coping Strategies Following a Child's Violent Death

  Open Access•Shirley A Murphy, L Clark Johnson et al.•OMEGA - Journal of Death and Dying•2002

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• The Death of a Loved One

  Open Access•Christian J Lalive d’Epinay, Christian J Lalive D'Epinay et al.•OMEGA - Journal of Death and Dying•2003

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• A National Survey of Hospice Bereavement Services

  Open Access•Craig Demmer•OMEGA - Journal of Death and Dying•2003

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• And there's Always this Great Hole Inside that Hurts”

  Open Access•Kate M Bennett, Kate Bennett et al.•OMEGA - Journal of Death and Dying•2001

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• Micro-Sociological Analysis of Social Support Following Traumatic Bereavement

  Open Access•Kari Dyregrov•OMEGA - Journal of Death and Dying•2004

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• An Empirical Study of the Proposed Complicated Grief Disorder Criteria

  Open Access•Nancy S Hogan, J William Worden et al.•OMEGA - Journal of Death and Dying•2004

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• The Impact of Hospice on Attitudes toward Funerals and Subsequent Bereavement Adjustment

  Open Access•Dina Ragow-O'Brien, Bert Hayslip et al.•OMEGA - Journal of Death and Dying•2000

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• Attachment and the Experience of Grief Following the Loss of a Spouse

  Open Access•Tracey Waskowic, Tracey D Waskowic et al.•OMEGA - Journal of Death and Dying•2003

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• Literature for Adults to Assist Them in Helping Bereaved Children

  Open Access•Donna L Schuurman•OMEGA - Journal of Death and Dying•2004

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• How Women Relate to Terminally Ill Husbands and their Subsequent Adjustment to Bereavement

  Open Access•Diane Kramer•OMEGA - Journal of Death and Dying•1997

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• The Adjustment of Parentally Bereaved Children

  Open Access•Neil Kalter, Kelly L Lohnes et al.•OMEGA - Journal of Death and Dying•2003

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• From Death Notification Through the Funeral

  Open Access•Linda Janzen, Susan Cadell et al.•OMEGA - Journal of Death and Dying•2004

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• Parental Bereavement over the Life Course

  Open Access•B De Vries, Rose Dalla Lana et al.•OMEGA - Journal of Death and Dying•1994

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• The Healing Alliance

  Open Access•Constance A Barlow, Heather J Coleman et al.•OMEGA - Journal of Death and Dying•2003

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• Emotional Well-Being in Recently Bereaved Widows

  Toni L Bisconti, C S Bergeman et al.•The Journals of Gerontology…•2004

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• A Co-twin--Control Study of Response to Widowhood

  P Liechtenstein, Margaret Gatz et al.•The Journals of Gerontology…•1996

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• The Role of Daily Positive Emotions During Conjugal Bereavement

  Anthony D Ong, C S Bergeman et al.•The Journals of Gerontology…•2004

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• Commentary

  Margaret S Stroebe•International Journal for the…•2004

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• Complicated Bereavement and Posttraumatic Stress Disorder Following Fatal Car Crashes

  Alan E Stewart•Death Studies•1999

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• The Impact of Complicated Grief on Mental and Physical Health at Various Points in the Bereavement Process

  Carol H Ott•Death Studies•2003

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• Finding Meaning in a Child's Violent Death

  Shirley A Murphy, L Clark Johnson et al.•Death Studies•2003

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• Sibling Bereavement

  LINDA ROBINSON MARGARET M MAHON•Death Studies•1997

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• Outcomes From a Randomized Controlled Trial of a Group Intervention for Hiv Positive Men and Women Coping With Aids-Related Loss and Bereavement

  Kathleen J Sikkema, Nathan B Hansen et al.•Death Studies•2004

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• Grief and religious belief

  D Austin, C J Lennings•Death Studies•1993

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• Gender differences in parental grief

  Reiko Schwab•Death Studies•1996

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• A picture is worth a thousand words”

  James B Gould•Death Studies•1994

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• Adults Mourning Suicide

  Cristiano Provini, Jessica R Everett Cynthi Celine Provini•Death Studies•2000

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• The Aging of Grief in Israel

  Ruth Malkinson, Liora Bar-Tur Ruth Malkinson•Death Studies•1999

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• Post-Mortem Organ Donation and Grief

  Marc P H D Cleiren, Ada J Van Zoelen•Death Studies•2002

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• Bereavement Services in Acute Care Settings

  David P Fauri, Barbara Ettner Pamela J Kovacs David P Fauri•Death Studies•2000

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• Effects of a Program of Intervention on Parental Distress Following Infant Death

  Deborah Murray, Deborah J Terry John C Judith A Murray•Death Studies•2000

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• College Student Bereavement, Scholarship, and the University

  David E Balk•Death Studies•2001

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• Managing Bereavement in the Classroom

  Karen Lowton, Irene J Higginson•Death Studies•2003

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• The Two-Track Model of Bereavement

  Simon Shimshon Rubin•Death Studies•1999

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• Recovery Following Bereavement

  David E Balk•Death Studies•2004

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• Does Writing About the Bereavement Lessen Grief Following Sudden, Unintentional Death

  Stacey H Kovac Lillian M Range, Stacey H Kovac Michelle Lillian M Range•Death Studies•2000

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• Do Positive Psychological States Shed Light on Recovery From Bereavement? Findings From a 3-Year Longitudinal Study

  Judith T Moskowitz, Susan Folkman et al.•Death Studies•2003

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• Beyond bereavement support group meetings

  Michael S Caserta, Dale A Lund•Death Studies•1996

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• Homicide Bereavement Counseling

  Rebecca Hatton•Death Studies•2003

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• Training Health Professionals in Caring for Dying Children and Grieving Families

  Danai Papadatou•Death Studies•1997

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• Bereavement Practices Among California Hospices

  Margaret Clausen Donna E Foliart, Margaret Clausen Cindy Donna E Foliart•Death Studies•2001

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• Perinatal Bereavement in Its Cultural Context

  MARY PAT HEBERT•Death Studies•1998

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• Cognitive-behavioral factors in adjustment to adult bereavement

  Laurie E Powers, Bruce E Wampold•Death Studies•1994

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• Bereavement Coping Self-Efficacy in Cancer Widows

  Jennifer Flores Charles C Benight, Jennifer Flores Ty Tas Charles C Benight•Death Studies•2001

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• Predictors of Psychosocial Distress After Suicide, Sids and Accidents

  Kari Dyregrov, Dag Nordanger et al.•Death Studies•2003

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• Rituals and the Grieving Process

  Bronna D Romanoff•Death Studies•1998

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• Meaning Constructs as Predictors of Bereavement Adjustment

  Louis A Gamino, Kenneth W Sewell•Death Studies•2004

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• Parental Bereavement

  Inese Wheeler•Death Studies•2001

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