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Choice in the Context of Dementia

Emerging Issues for Health Care Practice in Aging Societies

Bibliographic Data

ID20337755
AuthorsNancy Berlinger, Emily A Largent (0000-0002-7536-5077), M Buchbinder (0000-0002-2319-662X), Mildred Z Solomon (0000-0002-2144-2946)
Year2024
Volume54
IssueS1
PagesS2-S10
Publication date2024-01-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueThe Hastings Center Report (JOURNAL)
Journal identifiersISSN: 0093-0334 • E-ISSN: 1552-146X
PublisherWiley (PUBLISHER • GB)
DOI10.1002/hast.1549
PMID38382040
OpenAlexW4392007590
LanguageEN
References cited11

This introduction to the special report “Facing Dementia: Clarifying End‐of‐Life Choices, Supporting Better Lives” explains why focused attention to dementia is needed in bioethics and in health care practice in a range of settings. It explains how this strongly age‐associated condition shapes individual lives over years, revealing inequities in how dementia care is financed. The introduction explains the structure of the report, which consists of five essays, a consolidated set of recommendations from these essays, bibliographies, and other resources. The first essay is a landscape review written for health care professionals to support discussion, debate, and deliberation within professional societies and networks concerning a patient's voluntary choice to hasten their own death in the context of a dementia diagnosis. The landscape review is followed by three essays that suggest how several familiar concepts within care for persons with serious illness should be rethought to better support advance care planning, physician‐patient conversations, and access to community‐based palliative care and hospice when a person is facing dementia. The final essay presents a bold, practical argument for supporting better lives for people facing dementia, and for dementia caregivers, through primary care, the usual source of care for people with dementia

Advance care planning · Argument (complex analysis) · Bioethics · Context (archaeology) · Deliberation · Dementia · Disease · Health care · Palliative care · Political science · Ethics in medical practice · History · Law · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology · Gerontology

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    Open Access•R Cribb et al, ” “Michael's Choice et al.•The Hastings Center Report•2024

  • Opening the Door

    Open Access•M Buchbinder, Nancy Berlinger•The Hastings Center Report•2024

  • Guiding the Future

    Open Access•Barak Gaster, Thaddeus Mason Pope•The Hastings Center Report•2024

  • What Makes a Better Life for People Facing Dementia? Toward Dementia‐Friendly Health and Social Policy, Medical Care, and Community Support in the United States

    Open Access•Barak Gaster, Emily A Largent•The Hastings Center Report•2024

  • Becoming Good Citizens of Aging Societies

    Open Access•Nancy Berlinger, Mildred Z Solomon•The Hastings Center Report•2018

  • When People Facing Dementia Choose to Hasten Death

    Open Access•Emily A Largent, Joan Armangué i Herrero et al.•The Hastings Center Report•2024

  • Bioethics, Adaptive Preferences, and Judging the Quality of a Life with Disability

    Joseph A Stramondo•Social Theory and Practice•2021

  • What Comes after Caring? The Impact of Family Care on Women's Employment

    Open Access•Ulrike Ehrlich, K Mohring et al.•Journal of Family Issues•2020

Citation velocityhistorical
Highly citedNo

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