Residents’ awareness and attitudes about an ongoing community-based genome cohort study in Nagahama, Japan

Bibliographic Data

ID20402114
AuthorsKeiko Miyamoto (0000-0003-1856-8369, Kyoto University School of Public Health, Japan), Κ Miyamoto (0000-0001-9892-8138, Kyoto University, corresponding author), Miho Iwakuma (0000-0002-9059-1945, Kyoto University School of Public Health, Japan), Takeo Nakayama (0000-0002-7918-6252, Kyoto University School of Public Health, Japan)
Year2015
Volume24
Issue8
Pages957-969
Publication date2015-11-01
Open AccessYes
TypeARTICLE
VenuePublic Understanding of Science (JOURNAL)
Journal identifiersISSN: 0963-6625 • E-ISSN: 1361-6609
PublisherSAGE Publications (PUBLISHER • US)
DOI10.1177/0963662515574455
PMID25767212
OpenAlexW2327817630
LanguageEN
Citations received1
References cited24

This study’s objective was to examine residents’ attitudes toward and factors associated with an ongoing, real genome cohort study based on a community in Japan. After the genome cohort study’s launch in 2007, in November and December 2009, a self-administered questionnaire survey was conducted with 2500 randomly sampled residents aged 30–74 years, living in Nagahama, Japan. Responses were received from 1363 people (response rate = 54.5%), of whom 187 respondents had already participated in the study. Although the local government and researchers disseminated information through leaflets and citizen-information papers to every household, sent notices by personalized letter, and held symposia and other meetings, 65.7% of males and 47.2% of females first became aware of the study when they received our questionnaire. Among all respondents, 81.2% of those who knew that the genome cohort study had begun and 68.6% of those who did not know had a positive attitude toward the study. Their attitudes were significantly associated with high health consciousness and the desire for an extensive health check-up. Although for males there were no particular negative aspects of the genome study, for females, positive aspects were associated with participating in community activities and desiring an extensive health check-up. Although promoting a community-based genome cohort study requires huge effort, it is essential to popularize it. Actions are vital both for monitoring public awareness and attitudes at a community level and for keeping communication channels open

Cohort · Cohort study · Family medicine · Pathology · Public health · Ethics in Clinical Research · Health, Environment, Cognitive Aging · Medicine · Nursing · Nutrition, Genetics, and Disease · Gerontology

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