Public viewpoints on new non-invasive prenatal genetic tests
Bibliographic Data
| ID | 20402194 |
|---|---|
| Authors | Hannah Farrimond (0000-0001-9946-8620, University of California, San Francisco, corresponding author), Hannah R Farrimond (University of Exeter), Kelly (0000-0003-1045-4615, University of California, San Francisco), Susan E Kelly (University of Exeter) |
| Year | 2013 |
| Volume | 22 |
| Issue | 6 |
| Pages | 730-744 |
| Publication date | 2013-08-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Public Understanding of Science (JOURNAL) |
| Journal identifiers | ISSN: 0963-6625 • E-ISSN: 1361-6609 |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1177/0963662511424359 |
| PMID | 23885055 |
| OpenAlex | W2165884023 |
| Language | EN |
| Citations received | 4 |
| References cited | 33 |
Prenatal screening programmes have been critiqued for their routine implementation according to clinical rationale without public debate. A new approach, non-invasive prenatal diagnosis (NIPD), promises diagnosis of fetal genetic disorders from a sample of maternal blood without the miscarriage risk of current invasive prenatal tests (e.g. amniocentesis). Little research has investigated the attitudes of wider publics to NIPD. This study used Q-methodology, which combines factor analysis with qualitative comments, to identify four distinct “viewpoints” amongst 71 UK men and women: 1. NIPD as a new tool in the ongoing societal discrimination against the disabled; 2. NIPD as a positive clinical application offering peace of mind in pregnancy; 3. NIPD as a medical option justified for severe disorders only; and 4. NIPD as a valid expansion of personal choice. Concerns included the “trivialisation of testing” and the implications of commercial/direct-to-consumer tests. Q-methodology has considerable potential to identify viewpoints and frame public debate about new technologies
Amniocentesis · Biology · Chorionic villus sampling · Family medicine · Fetus · Genetic counseling · Genetic diagnosis · Miscarriage · Pathology · Pregnancy · Prenatal diagnosis · Public health · Viewpoints · Medicine · Prenatal Screening and Diagnostics · Psychology · Genetics
A Treatise on Probability
Q Methodology
Assessing a controversial medical technology
Prenatal Testing and Disability Rights
Choosing not to choose
Rethinking Methods in Psychology
Because of the risks
Why women say yes to prenatal diagnosis
Understandings of Down's syndrome
Chance, choice and control
How medical specialists appraise three controversial health innovations
On Ambivalence and Risk
Public attitudes toward fetal diagnosis and the termination of life
| Citations per year | 0.36 |
|---|---|
| Citation span | 2015 - 2023 (9) |
| Highly cited | No |