Rare Disease and Quality of Life
Questionnaire and Indicators on Epidermolysis Bullosa in Italy
Bibliographic Data
| ID | 2064672 |
|---|---|
| Authors | Paolo Mariani (0000-0003-4293-1009), Paolo Mariani (0000-0002-8848-8893, University of Milano-Bicocca), Andrea Marletta (0000-0002-4050-5316, University of Milano-Bicocca), Mariangela Zenga (0000-0002-8112-5627, University of Milano-Bicocca, corresponding author) |
| Year | 2024 |
| Volume | 175 |
| Issue | 3 |
| Pages | 1219-1233 |
| Publication date | 2024-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Social Indicators Research (JOURNAL) |
| Journal identifiers | ISSN: 0303-8300 • E-ISSN: 1573-0921 |
| Publisher | Springer Science and Business Media LLC (PUBLISHER) |
| DOI | 10.1007/s11205-024-03405-9 |
| OpenAlex | W4401314596 |
| Language | EN |
| Citations received | 2 |
| References cited | 35 |
Context (archaeology · Disease · Environmental health · Health care · Mood · Pathology · Public health · Quality of life (healthcare · Quality of Life Research · Autoimmune Bullous Skin Diseases · Clinical Psychology · Medicine · Nail Diseases and Treatments · Nursing · Skin and Cellular Biology Research · Gerontology
Delphi methodology in healthcare research
Defining consensus
A Comparative Review of Generic Quality-of-Life Instruments
Using and Reporting the Delphi Method for Selecting Healthcare Quality Indicators
Eq-Sd
Coefficient alpha and the internal structure of tests
Generic and Disease-Specific Measures in Assessing Health Status and Quality of Life
Happiness is everything, or is it? Explorations on the meaning of psychological well-being
The structure of psychological well-being revisited
| Unique citing works | 2 |
|---|---|
| Citations per year | 2 |
| Citation span | 2025 - 2026 (2) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 2 |