Female family carers’ experiences of violent, abusive or harmful behaviour by the older person for whom they care

A case of epistemic injustice

Bibliographic Data

ID21058680
AuthorsLouise Isham (0000-0002-3660-1073, School of Nursing University of Birmingham Birmingham UK, corresponding author), Caroline Bradbury-Jones (0000-0002-5237-6777, University of Birmingham), Caroline Bradbury‐Jones (School of Nursing University of Birmingham Birmingham UK), Alistair Hewison (0000-0002-8508-1967, School of Nursing University of Birmingham Birmingham UK)
Year2020
Volume42
Issue1
Pages80-94
Publication date2020-01-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueSociology of Health & Illness (JOURNAL)
Journal identifiersISSN: 0141-9889 • E-ISSN: 1467-9566
PublisherWiley (PUBLISHER • GB)
DOI10.1111/1467-9566.12986
PMID31515820
OpenAlexW2969780161
LanguageEN
Citations received15
References cited45

Family carers affected by violent, abusive or harmful behaviour by the older person for whom they care face social and epistemic challenges in developing and sharing knowledge about their experiences. These difficulties have contributed to a situation in which there is a paucity of evidence and public discourse about how we understand violence and harm instigated by people who have care needs or are ‘vulnerable’. This paper reports the findings of a qualitative study that involved 12 in‐depth interviews with female carers affected by violence, abuse or harm. The study was informed theoretically by Miranda Fricker's concept of epistemic injustice which was used as a framework for analysis. There were two principal findings: (1) Carers were sensitive to anticipatory stigma and loss of moral autonomy. As a result, they self‐censured what they shared and, at times, were met with subtle but powerful processes of silencing. (2) Carers had limited linguistic and conceptual resources to explain the emotional and social aspects of the harm they experienced, exacerbated by implicit social norms about the ‘private’ and gendered nature of familial care. To conclude, we discuss the implications of these findings for sociological research and health and social care practice

Abusive relationship · Autonomy · Criminology · Domestic violence · Harm · Injustice · Poison control · Qualitative research · Social science · Sociology · Suicide prevention · Employment and Welfare Studies · Homelessness and Social Issues · Medicine · Mental Health and Patient Involvement · Psychology · Social Psychology

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