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Digital doulaship

Online endometriosis communities and rhetorical pathways to care

Bibliographic Data

ID21378583
AuthorsHannah Taylor (0000-0003-3957-5306, Duke University, corresponding author)
Year2026
Pages1-21
Publication date2026-05-18
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueQuarterly Journal of Speech (JOURNAL)
Journal identifiersISSN: 0033-5630 • E-ISSN: 1479-5779
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/00335630.2026.2664744
OpenAlexW7161546426
LanguageEN

This article argues that online endometriosis communities constitute a form of digital doulaship, where community members create networked care webs that contest medical gaslighting and expand pathways to care. Through analysis of posts and comments from the Reddit community r/endo, this study demonstrates how individuals with endometriosis employ digital platforms to visualize otherwise inexpressible pain, broker access to healthcare resources, and affirm experiences of institutional dismissal. Unlike traditional doulaship’s dyadic relationships, digital doulaship operates through peer-to-peer, distributed networks that leverage platform affordances to create persistent communities of support. Drawing from disability justice scholarship on care webs and reproductive justice theories of advocacy, this research reveals how digital doulaship enables collective rhetorical labor that transforms private suffering into political representation. Rather than reinforcing fertility-focused medical frameworks, these communities actively resist reproductive framings of endometriosis, creating alternative rhetorical spaces where chronic pain is validated on its own terms. This analysis contributes to rhetorical scholarship by demonstrating how marginalized individuals craft meaningful advocacy practices within systems designed to silence their embodied experiences

Endometriosis · MEDLINE · Rhetoric · Rhetorical question · The Internet · Endometriosis Research and Treatment · Gender, Feminism, and Media · Social Media in Health Education

Citation velocityhistorical
Highly citedNo

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