Experience of Families Facing Cancer in Palliative Care
Bibliographic Data
| ID | 21433320 |
|---|---|
| Authors | Cínthia Cristina Oliveski (0000-0002-5381-9461, Universidade Federal de Santa Maria), Nara Marilene Oliveira Girardon-Perlini (0000-0002-3604-2507, Universidade Federal de Santa Maria), Silvana Bastos Cogo (0000-0002-1686-8459, Universidade Federal de Santa Maria), Franciele Roberta Cordeiro (0000-0001-6194-5057, Universidade Federal de Pelotas), Fernanda Cristóvão Martins (0000-0002-1293-9707, Universidade Federal de Santa Maria), Priscila Perfeito Paz (0000-0002-1706-9923, Universidade Federal de Santa Maria) |
| Year | 2021 |
| Volume | 30 |
| Publication date | 2021-01-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Texto & Contexto - Enfermagem (JOURNAL) |
| Journal identifiers | ISSN: 0104-0707 • E-ISSN: 1980-265X |
| Publisher | FapUNIFESP (SciELO) (PUBLISHER) |
| DOI | 10.1590/1980-265x-tce-2020-0669 |
| OpenAlex | W3197385694 |
| SciELO | S0104-07072021000100370 |
| Language | EN |
| Citations received | 4 |
| References cited | 15 |
Objective: to understand the experience of families facing cancer in palliative care of one of its members. Method: this is a qualitative research based on the theoretical-methodological framework of Grounded Theory. Six families participated, totaling 15 people. Data were collected from January to December 2019 in the homes of families in a municipality in southern Brazil, through an in-depth interview with the construction of a genogram. Analysis followed the constant comparative method steps: open, selective and theoretical coding. Results: the concepts discovering cancer; suffering with the reality imposed by the illness; preparing to face illness; deciding on treatment; facing the finitude of life, they are part of the central category “Living one day at a time”, which symbolically defines families’ experiences. The substantive theory elaborated shows that the definitions, actions and strategies adopted by families, in family dynamics and in interpersonal interactions, along a trajectory that culminates in the terminality of a relative’s life, is permeated by hope maintenance. Conclusion: throughout the illness experience, families promote changes in their daily lives and in family dynamics, undergoing adaptations and using their internal strengths in an attempt to re-establish the balance prior to the disease. Families live with uncertainty about the future, but it is the hope that drives them to live one day at a time
Axial coding · Coding (social sciences) · Grounded theory · Interpersonal communication · Palliative care · Qualitative research · Social science · Sociology · Theoretical sampling · Medicine · Nursing · Palliative and Oncologic Care · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology · Social Psychology
| Citations per year | 1 |
|---|---|
| Citation span | 2022 - 2024 (3) |
| Highly cited | No |