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Respecting relational agency in the context of vulnerability

What can research ethics learn from the social sciences

Datos Bibliográficos

ID21504175
AutoresJ G van der Roest (0000-0002-0496-3205, Nuffield Department of Population Health, Ethox Centre and Wellcome Centre for Ethics & Humanities University of Oxford Oxford UK, autor de correspondencia), Busisiwe Nkosi (0000-0002-7084-3252, Africa Health Research Institute KwaZulu‐Natal South Africa), Janet Seeley (0000-0002-0583-5272, Africa Health Research Institute KwaZulu‐Natal South Africa), Sassy Molyneux (0000-0001-9522-416X, Department of Tropical Medicine University of Oxford and KEMRI Wellcome Trust Research Programme Kilifi Kenya), Maureen Kelley (0000-0001-8230-5315, Nuffield Department of Population Health, Ethox Centre and Wellcome Centre for Ethics & Humanities University of Oxford Oxford UK)
Año2023
Volumen37
Número4
Páginas379-388
Fecha de publicación2023-05-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaBioethics (JOURNAL)
Identificadores de la revistaISSN: 0269-9702 • E-ISSN: 1467-8519
EditorialWiley (PUBLISHER • GB)
DOI10.1111/bioe.13139
PMID36709500
OpenAlexW4318449990
IdiomaEN
Citas recibidas11
Referencias citadas1

Despite advances in theory, often driven by feminist ethicists, research ethics struggles in practice to adequately account for and respond to the agency and autonomy of people considered vulnerable in the research context. We argue that shifts within feminist research ethics scholarship to better characterise and respond to autonomy and agency can be bolstered by further grounding in discourses from the social sciences, in work that confirms the complex nature of human agency in contexts of structural and other sources of vulnerability. We discuss some of the core concepts and critiques emerging from the literature on women and children's agency in under‐resourced settings, highlighting calls to move from individualistic to relational models of agency, and to recognise the ambiguous, value‐laden, and heterogeneous nature of the concept. We then draw out what these conceptual shifts might mean for research ethics obligations and guidance, illustrating our analysis using a case vignette based on research ethics work conducted in South Africa. We conclude that if research practices are to be supportive of agency, it will be crucial to scrutinise the moral judgements which underpin accounts of agency, derive more situated definitions of and responses to agency, and enable people and participants to influence these based on their own experiences and self‐perceptions

Autonomy · Engineering ethics · Epistemology · Moral agency · Political science · Research ethics · Scholarship · Situated · Social science · Sociology · Vignette · Ethics in Clinical Research · Ethics in medical practice · Law · Psychology · Qualitative Research Methods and Ethics · Social Psychology

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Obras citantes distintas11
Citas por año3,67
Intervalo de citas2023 - 2026 (4)
Velocidad de citacióncurrent
Altamente citadoNo
Tipos de citaNeutras: 11
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