The role of community engagement in addressing bystander risks in research
The case of a Zika virus controlled human infection study
Bibliographic Data
| ID | 21504287 |
|---|---|
| Authors | Seema Shah (0000-0001-7726-1186, Lurie Children’s Hospital and Northwestern Feinberg School of Medicine, corresponding author), F Dewolfe Miller (0000-0002-5130-056X, Cornell University), Franklin Miller (Cornell Weill School of Medicine), Holly Fernandez Lynch (0000-0001-7813-9879, Department of Medical Ethics and Health Policy Perelman School of Medicine University of Pennsylvania) |
| Year | 2020 |
| Volume | 34 |
| Issue | 9 |
| Pages | 883-892 |
| Publication date | 2020-11-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Bioethics (JOURNAL) |
| Journal identifiers | ISSN: 0269-9702 • E-ISSN: 1467-8519 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/bioe.12806 |
| PMID | 33141451 |
| OpenAlex | W3096702154 |
| Language | EN |
| Citations received | 4 |
There is limited guidance on how to assess the ethical acceptability of research risks that extend beyond research participants to third parties (or “research bystanders”). Community or stakeholder engagement has been proposed as one way to address potential harms to community members, including bystanders. Despite widespread agreement on the importance of community engagement in biomedical research, this umbrella term includes many different goals and approaches, agreement on which is ethically required or recommended for a particular context. We analyse the case of a potential Zika virus human challenge trial to assess whether and how community engagement can help promote the ethical acceptability of research posing risks to bystanders. We conclude that, in addition to having intrinsic value, community engagement can improve the identification of bystander risks, effective approaches to minimizing them, and transparency about bystander risks for host communities
Bystander effect · Community engagement · Environmental health · Political science · Public relations · Virus · Zika virus · Medicine · Mosquito-borne diseases and control · Vaccine Coverage and Hesitancy · Viral Infections and Outbreaks Research · Immunology · Virology
| Citations per year | 0.8 |
|---|---|
| Citation span | 2021 - 2026 (6) |
| Highly cited | No |