The ‘Expiry Problem’ of broad consent for biobank research - And why a meta consent model solves it
Bibliographic Data
| ID | 21514030 |
|---|---|
| Authors | Thomas Ploug (0000-0002-3693-0547, Aalborg University, corresponding author), Søren Holm (0000-0003-1411-1855, University of Oslo) |
| Year | 2020 |
| Volume | 46 |
| Issue | 9 |
| Pages | 629-631 |
| Publication date | 2020-09-01 |
| Open Access | No |
| Type | ARTICLE |
| Venue | Journal of Medical Ethics (JOURNAL) |
| Journal identifiers | ISSN: 0306-6800 • E-ISSN: 1473-4257 |
| Publisher | BMJ (PUBLISHER • GB) |
| DOI | 10.1136/medethics-2020-106117 |
| PMID | 32098907 |
| OpenAlex | W3008143410 |
| Language | EN |
| Citations received | 5 |
| References cited | 9 |
In this response to Neil Manson’s latest intervention in our debate about the best consent model for biobank research we show, contra Manson that the ‘expiry problem’ that affects broad consent models because of changes over time in methods, purposes, types of data used and governance structures is a real and significant problem. We further show that our preferred implementation of meta consent as a national consent platform solves this problem and is not subject to the cost and burden objections that Manson raises
Alternative medicine · Biobank · Bioinformatics · Biology · Business · Corporate governance · Data science · Informed consent · Internet privacy · Psychiatry · World Wide Web · Biomedical Ethics and Regulation · Computer Science · Ethics in Clinical Research · Health Systems, Economic Evaluations, Quality of Life · Medicine · Psychology
Incidental findings in clinical imaging
Evaluating models of consent in changing health research environments
Controversies between regulations of research ethics and protection of personal data
Control, trust and the sharing of health information
Public and Patients’ Perspectives Towards Data and Sample Sharing for Research
| Citations per year | 1 |
|---|---|
| Citation span | 2021 - 2026 (6) |
| Highly cited | No |