A participatory-action research exploration of parent and clinician experiences of type-1 diabetes diagnosis
Bibliographic Data
| ID | 21579752 |
|---|---|
| Authors | Danielle Shaw (North Wales Clinical Psychology Programme, Bangor University, corresponding author), John Connolly (0000-0002-8242-0070, Betsi Cadwalader Univerisity Health Board, NHS Wales), Lucy Piggin (North Wales Clinical Psychology Programme, Bangor University) |
| Year | 2025 |
| Pages | 1-28 |
| Publication date | 2025-09-22 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Psychology & Health (JOURNAL) |
| Journal identifiers | ISSN: 0887-0446 • E-ISSN: 1476-8321 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/08870446.2025.2553866 |
| PMID | 40984673 |
| OpenAlex | W4414442717 |
| Language | EN |
| References cited | 48 |
OBJECTIVES: To systemically explore parent and clinician experiences of type-1 diabetes (T1D) diagnosis at a large UK hospital. To use those experiences to collaboratively create an action plan to improve support for parents and clinicians. MATERIALS AND METHODS: semi-structured focus groups. Data was analysed using thematic analysis and refinement of themes/findings was supported through reflective groups with participants. RESULTS: Six themes were identified from parents and clinicians experiences: (1) The limits and pressures on clinicians and the system (2) Parents' emotional lens at diagnosis; (3) The power of knowledge (4) Difficulties with communication and transparency (5) Conditions for learning, adjusting, and forming relationships (6) Sharing experiences & gaining support. An action plan was created to address the needs identified. CONCLUSION: The task of diagnosis of T1D in childhood is complex and requires sharing/processing life-altering news and transferring large amounts of information. There is a connection between systemic difficulties (e.g. staff knowledge and communication) and parental distress at diagnosis. Collaboration between clinicians and patients was helpful in identifying actionable improvements to a complex process and system
Diabetes mellitus · Distress · MEDLINE · Diabetes and associated disorders · Diabetes Management and Education · Diabetes Management and Research
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| Citation velocity | historical |
|---|---|
| Highly cited | No |