The Impact of Incidental Findings Detected During Brain Imaging on Research Participants of the Rotterdam Study

This interview study investigates the short- and long-term implications of incidental findings detected through brain imaging on research participants’ lives and their surroundings. For this study, nine participants of the Rotterdam Scan Study with an incidental finding were approached and interviewed. When examining research participants’ narratives on the impact of the disclosure of incidental findings, the authors identified five sets of tensions with regard to motivations for and expectations of research participation, preferences regarding disclosure, short- and long-term impacts and impacts on self and others. The paper shows: (1) that the impact of incidental findings may be greater than participants at first let on; (2) incidental findings can have significant effects on participants’ social environment; and (3) participants may not feel prepared for disclosure even if incidental findings have been discussed during the informed consent process. The authors call for investigators to be aware of research participants’ experiences and these short- and long-term impacts when designing suitable courses of action for the detection and management of incidental findings in research settings

Alternative medicine · Informed consent · Narrative · Artificial Intelligence in Healthcare and Education · Ethics in Clinical Research · Medicine · Memory Processes and Influences · Psychology · Social Psychology

• The views of ethics committee members and medical researchers on the return of individual research results and incidental findings, ownership issues and benefit sharing in biobanking research in a South Indian city

  Open Access•Manjulika Vaz, Mário Vaz et al.•Developing World Bioethics•2018

  Incluir item

• Three Approaches to Qualitative Content Analysis

  Open Access•Hsiu-Fang Hsieh, Sarah E Shannon•Qualitative Health Research•2005

  Incluir item