Family Communication in Autism Spectrum Disorder
Applying the Family Caregiver Communication Typology to Parent Caregivers
Bibliographic Data
| ID | 21616397 |
|---|---|
| Authors | Emily Pfender (0000-0001-9374-3521, From University of Delaware), Elaine Wittenberg (0000-0002-1140-0742, From California State University Los Angeles), Anna M Kerr (0000-0002-4778-8515, From Ohio University, corresponding author), Jack Goldsmith (0000-0002-1808-3313, From University of Memphis) |
| Year | 2023 |
| Volume | 38 |
| Issue | 13 |
| Pages | 2945-2955 |
| Publication date | 2023-11-10 |
| Open Access | No |
| Type | ARTICLE |
| Venue | Health Communication (JOURNAL) |
| Journal identifiers | ISSN: 1041-0236 • E-ISSN: 1532-7027 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/10410236.2022.2128232 |
| PMID | 36189789 |
| OpenAlex | W4300688520 |
| Language | EN |
| References cited | 44 |
Parents of children with Autism Spectrum Disorder (ASD) experience greater stress and caregiver burden than parents of children with other disabilities. To cope with the stress of long-term caregiving, they rely on professionals for support and guidance. However, parents continue to report unmet communication and support needs. To inform tailored communication for parents of a child with ASD, this study used the existing Family Caregiver Communication Typology framework which identifies four caregiver communication types (manager, carrier, partner, and lone) and their unique communication and support needs. In-depth, structured interviews were conducted with parents (n = 22) and ASD professionals (n = 28) to explore communication characteristics of ASD parent caregivers. A thematic analysis revealed communication behaviors among four ASD parent caregiver types, further validating the typology. Future research is needed to develop targeted interventions for improving family-centered care based on ASD parent caregiver types
Augmentative and alternative communication · Autism · Autism spectrum disorder · Caregiver stress · Dementia · Developmental psychology · Family caregivers · Psychiatry · Psychological intervention · Qualitative research · Thematic analysis · Typology · Autism Spectrum Disorder Research · Child Nutrition and Feeding Issues · Clinical Psychology · Family and Disability Support Research · Medicine · Nursing · Psychology
Basics of qualitative research
Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome
Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014
Which terms should be used to describe autism? Perspectives from the UK autism community
Family Communication Patterns Theory
Caring for the Family Caregiver
Family Resilience, Parenting Styles and Psychosocial Adjustment of Children With Chronic Illness
Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children
Moderators of Stress in Parents of Children with Autism
We were on our own
Parents' and professionals' perceptions of family-centered care for children with autism spectrum disorder across service sectors
| Highly cited | No |
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